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IACC Town Hall Meeting Agenda

Saturday, May 3, 2008
10:00 a.m. to 4:25 p.m. Pacific

Cancer Center
University of California Davis

Time Event
10:00 a.m. Welcome

Isaac Pessah
Director, Center for Children’s Environmental Health and Disease Prevention
UC Davis
10:05 Opening Remarks

Samuel Wilson
Acting Director, National Institute of Environmental Health Sciences (NIEHS)
10:15 Interagency Autism Coordinating Committee (IACC) Strategic Planning Process to Date

Cindy Lawler
NIEHS IACC representative
10:30 Introductory Remarks from Panel I Moderator

Michael Chez
Director, Pediatric Neurology, Sutter Neuroscience Institute, Sacramento California

Panel I (morning session): ASD Treatment: Research Priorities for Evidence-based Practices
Goal: Stimulate discussion about the range of treatments being used; develop recommendations about research priorities including issues of efficacy and safety.

Description: A range of conventional and alternative/complementary approaches are being used by parents and clinicians to treat children with ASD, yet many have not been studied in controlled clinical trials. How can a stronger evidence base be established to inform the treatment of individuals with ASD?
10:40 Perspectives from Panel Members (5 members, 5-10 minutes each)
  • Sally Rogers, Professor of Psychiatry and Behavioral Sciences, M.I.N.D. Institute, UC Davis Medical Center
  • Randi Hagerman, Professor of Pediatrics, Medical Director, M.I.N.D. Institute, UC Davis Medical Center
  • Lynne Mielke, Founder, Developmental Spectrums East Bay Medical Clinic, Pleasanton California
  • Nancy Duley, parent/advocate
  • Claire Bothwell, parent/advocate, Board Chair Emeritus, National Autism Association
Lyn Redwood, IACC public representative, Cofounder, Coalition for Safe Minds
11:20 50 Minutes for Open Dialogue with Attendees
12:10 p.m. Lunch (on your own)
1:10 Introductory Remarks from Panel II Moderator

Isaac Pessah
Director, Center for Children’s Environmental Health and Disease Prevention
UC Davis

Panel II (early afternoon session): ASD Interventions: Beyond the Young Child
Goal: Stimulate discussion about the differing needs of older children and adults with ASD and review the current state of science in this area; develop research recommendations for interventions that target this underserved population.

Description: To date, autism treatment research has been focused primarily on young children, with little attention directed at treatment/interventions for older children, adolescents and adults with ASD. Community views about treatments and intervention across the lifespan are needed to develop appropriate research questions.
1:20 Perspectives from Panel Members (4 members – 5-10 minutes each)
  • Pilar Bernal, ASD Regional Director, Kaiser Permanente, Northern California
  • Ruth Christ Sullivan, first president, Autism Society of America; founder and first executive director, now President, Autism Services Center, Huntington West Virginia
  • Dena Gassner, ASD advocate, Director, Center for Understanding, Franklin Tennessee
  • Rick Rollens, parent, Cofounder, UC Davis M.I.N.D. Institute
Lee Grossman, IACC public representative, President and Chief Executive Officer, Autism Society of America
2:00 50 Minutes for Open Dialogue with Attendees
2:50 Break
3:10 Summary of Panel I & II Recommendations–Michael Chez, Isaac Pessah
3:25 Open Dialog with IACC and Public
  • Samuel Wilson, Acting Director, NIEHS
  • Cindy Lawler, IACC representative, NIEHS
  • Lyn Redwood, IACC public member
  • Lee Grossman, IACC public member
4:25 Closing Remarks

Samuel Wilson
Acting Director, NIEHS

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