IACC Full Committee Meeting Speaker Biographies - April 8, 2014
Jon Baio, Ed.S.
U.S. Centers for Disease Control and Prevention
Dr. Baio is an Epidemiologist with the Developmental Disabilities Branch in the National Center on Birth Defects and Developmental Disabilities of the U.S. Centers for Disease Control and Prevention, where he has worked since 1996. He serves as Team Lead for developmental disabilities surveillance and as Principal Investigator on the Autism and Developmental Disabilities Monitoring, Network, studying the prevalence of autism and other developmental disabilities in several communities throughout the United States.
Gregory K. Farber, Ph.D.
Office of Technology Development and Coordination
National Institute of Mental Health
Dr. Farber has a B.S. from the Pennsylvania State University (Penn State) in chemistry (1984) and a Ph.D. from the Massachusetts Institute of Technology in physical chemistry (1988). His research in graduate school involved determining the three-dimensional structure and mechanism of the enzyme xylose isomerase in the laboratory of Dr. Gregory A. Petsko. After graduate school, Dr. Farber received a Life Sciences Research Fellowship to work on mechanistic enzymology with Dr. W. W. Cleland at the University of Wisconsin. Following his postdoctoral fellowship, he returned to Penn State as an Assistant Professor of Biochemistry and rose to the rank of Associate Professor with tenure in 1998. Dr. Farber's research included work on structural movies of enzyme action, molecular evolution, and mechanistic enzymology.
Following a sabbatical year in the Division of Biological Infrastructure at the National Science Foundation, he decided to stay in Government service. Dr. Farber moved to the National Center for Research Resources (NCRR), part of NIH, in 2000, where he managed a number centers and individual investigator awards in technology development and bioinformatics, as well as a cohort of interdisciplinary research centers. He concluded his service at NCRR as Director of the Office of Extramural Activities and Director of the Office of Construction Grants.
In June 2011 Dr. Farber became the Director of the Office of Technology Development and Coordination at the National Institute of Mental Health (NIMH). The Office is responsible for coordinating all technology development and bioinformatics activities at NIMH, overseeing the National Database for Autism Research, managing the Human Connectome Project on behalf of the NIH Neuroscience Blueprint, and overseeing the NIMH small-business program.
Denise Juliano-Bult, M.S.W.
Systems Research Program and the Disparities in Mental Health Services Research Program
Division of Services and Intervention Research
National Institute of Mental Health
Ms. Juliano-Bult is Chief of the Systems Research Program and the Disparities in Mental Health Services Research Program in the Division of Services and Intervention Research at the National Institute of Mental Health (NIMH). In this position she administers a research portfolio that supports studies on the organization and delivery of mental health and related services across a spectrum of settings, including the criminal justice system, housing and social services, college mental health, and studies on services for people with autism spectrum disorders. Ms. Juliano-Bult is also an Adjunct Instructor of Research Methods at the National Catholic School of Social Services' Master of Social Work program and in The George Washington University's Art Therapy Master of Arts Degree program.
Previously, she served as Director of Program and Community Development for the Depression Awareness, Recognition, and Treatment (D/ART) program, a research dissemination activity of the Extramural Research Program at NIMH. Previously, as Chief of Allied Health in the NIMH Division of Intramural Research, Ms. Juliano-Bult supervised the clinical services provided to persons with schizophrenia who were enrolled in inpatient studies, including recruiting and screening participants for the studies.
Ms. Juliano-Bult has a master's degree in social work from the Catholic University of America and a B.A. degree in psychology from the Honors College at the University of Michigan. Prior to joining the Federal Government, Ms. Juliano-Bult worked as a social worker and therapist in outpatient mental health clinics, a homeless shelter, and a home for delinquent teenage girls in the District of Columbia metropolitan area.
Donna M. Kimbark, Ph.D.
Autism Research Program
Congressionally Directed Medical Research Programs
U.S. Department of Defense
Dr. Kimbark joined the IACC as a Federal member in 2012. She is the Program Manager for the Congressionally Directed Medical Research Programs at the U.S. Department of Defense (DoD), a complex extramural biomedical research program that includes the Autism Research Program, the Bone Marrow Failure Research Program, the Multiple Sclerosis Research Program, and the Peer-Reviewed Cancer Research Program. Dr. Kimbark oversees the management of 214 research awards representing $136.25 million in appropriated funds. She holds a Ph.D. in molecular pharmacology and cancer therapeutics from the State University of New York, Albany.
Story C. Landis, Ph.D.
National Institute of Neurological Disorders and Stroke
Office of the Director
National Institutes of Health
Dr. Landis has been the Director of the National Institute of Neurological Disorders and Stroke (NINDS) since 2003. A native of New England, she received her undergraduate degree from Wellesley College (1967) and her Ph.D. from Harvard University (1973). After postdoctoral work at Harvard University, Dr. Landis served on the faculty of the Department of Neurobiology there. In 1985 she joined the faculty of Case Western Reserve University School of Medicine, where she created the Department of Neurosciences, which, under her leadership, achieved an international reputation for excellence. Throughout her research career, Dr. Landis has made fundamental contributions to the understanding of nervous system development. She has garnered many honors; is an elected fellow of the Institute of Medicine, the Academy of Arts and Sciences, and the American Association for the Advancement of Science; and in 2002 was elected President of the Society for Neuroscience.
Dr. Landis joined NINDS in 1995 as Scientific Director and worked to reengineer the Institute's intramural research programs. Between 1999 and 2000 she led the movement, together with the National Institute of Mental Health (NIMH) Scientific Director, to bring a sense of unity and common purpose to 200 neuroscience laboratories from 11 different NIH Institutes. As NINDS Director, Dr. Landis oversees an annual budget of $1.5 billion, which supports research by investigators in public and private institutions across the country and by scientists working in the Institute's intramural program. Together with the directors of NIMH and the National Institute on Aging, she cochairs the NIH Blueprint for Neuroscience Research, a roadmap-like effort to support trans-NIH activities in the brain sciences.
John Elder Robison
Neurodiversity Scholar in Residence, College of William and Mary
Self-Advocate, Parent, and Author
Mr. Robison joined the IACC as a public member in 2012. He is an adult on the autism spectrum who is best known for working to increase public understanding of autism and helping schools, businesses, and government accommodate and accept people with autism. Mr. Robison is committed to diversity and is a strong advocate for autism science and research. He believes people with autism deserve an equal opportunity at success in work and social life and is dedicated to that goal. Mr. Robison is active on numerous autism spectrum disorder-related boards and committees in the United States, Canada, Europe, and Australia. He is also the Neurodiversity Scholar in Residence at the College of William and Mary.
In addition to his service on the IACC, Mr. Robison has served on the steering committee of the International Classification of Functioning, Disability and Health Autism Core Set project and on organizing committees for the International Society for Autism Research, the Institute for Autism Research at Canelius College, panels and committees for the National Institutes of Health, and boards for the U.S. Centers for Disease Control and Prevention. His books Look Me in the Eye and Be Different are some of the most widely read accounts of life with autism/Asperger's in the world. Mr. Robison's newest book Raising Cubby is now available in paperback. His writing has been translated into more than 15 languages and sold in more than 70 countries. Mr. Robison is published by Random House in the United States; Scribe, Random House, and Harper Collins in Australia; and other presses around the world. In addition to his work as an autism advocate and author, he has had a lifelong interest in cars and is the founder of JE Robison Service Company, Inc., of Springfield, Massachusetts, a business that restores Rolls Royce, Land Rover, Jaguar, Mercedes, and BMW automobiles. Earlier Mr. Robison worked as an engineer in music and electronics and was the U.S. engineer for Britannia Row Audio, the sound company formed by the musical group Pink Floyd. He is the creator of the signature illuminated, fire-breathing, and rocket-launching special effects guitars played by the rock group KISS.
Linda K. Smith
Deputy Assistant Secretary and Inter-Departmental Liaison for Early Childhood Development
Administration for Children and Families
Ms. Smith joined the IACC as a Federal member in 2013. As Deputy Assistant Secretary and Inter-Departmental Liaison for the Administration for Children and Families, she provides overall policy coordination for the Head Start and Early Head Start Program and the Child Care and Development Fund and serves as the liaison with the U.S. Department of Education and other Federal agencies. Ms. Smith's office serves as a focal point for early childhood policy at the Federal level. She previously served as Executive Director of the National Association of Child Care Resource and Referral Agencies (NACCRRA), where she represented more than 650 community-based agencies concerned with the care of children in their earliest years.
Ms. Smith led the organization through significant growth and transformation and was the driving force behind NACCRRA's national policy agenda and strategic plan to improve the quality of childcare nationwide. Key components of NACCRRA advocacy efforts included strengthening childcare licensing and oversight, requiring comprehensive background checks, and establishing minimum training requirements for all childcare workers. Prior to joining NACCRRA, Ms. Smith served as a legislative fellow and professional staffer on the Senate Health, Education, Labor and Pensions Committee under the Chairmanship of the late Senator Edward M. Kennedy. Previously, she was Director of the Office of Family Policy for the Secretary of Defense, where she was one of the primary architects of the military's childcare program. Additionally, Ms. Smith has held positions with both the United States Army and United States Air Force. She began her career in early childhood education on the Northern Cheyenne Reservation in her native State of Montana. She is a graduate of the University of Montana.
Stuart Spielman, J.D., LL.M.
Senior Policy Advisor and Counsel
Mr. Spielman is responsible for managing Federal Government affairs for Autism Speaks. He advocates on Capitol Hill and before Federal agencies for research and services that can improve the lives of children and adults on the autism spectrum.
As a volunteer in the late 1990s, Mr. Spielman championed several State-based initiatives, including the Nation's first Medicaid home- and community-based services waiver for children with autism. His most recent efforts have focused in the Federal arena. Mr. Spielman has worked on the Children's Health Act of 2000, the Combating Autism Act of 2006, the Combating Autism Reauthorization Act, and other significant legislation.
He began working for Autism Speaks in January 2008. Mr. Spielman holds a J.D. degree from the University of Wisconsin School of Law and a master's degree in laws in taxation from the New York University School of Law. He and his wife Mona are the parents of two teenage boys, one of whom is on the autism spectrum.