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NIH Workshop: Ethical, Legal and Social Implications (ELSI) of Autism Research , September 26, 2011, 8:30 a.m. to 5:00 p.m. Eastern

Slide Presentations

Presentation Presenter(s)
Overview of ELSI (PDF – 674 KB) Mildred Cho, PhD, Professor, Department of Pediatrics, Associate Director, Stanford Center for Biomedical Ethics, Stanford School of Medicine
Bridging Autism, Science and Society in the UK (PDF – 200 KB) Elizabeth Pellicano, PhD, Senior Lecturer, Centre for Research in Autism and Education (CRAE), Department of Psychology and Human Development, Institute of Education, University of London
Ethical Issues in Autism Research, As Seen by an Autistic Person (PDF – 376 KB) John Elder Robison, Author of Look Me in the Eye: My Life with Asperger 's and Be Different: Adventures of a Free-range Aspergian, Adjunct Faculty, Department of Communication Sciences and Disorders, Elms College
Understanding Ethical Implications of Genetic Testing and Research (PDF – 672 KB) Holly Tabor, PhD, Assistant Professor, Department of Pediatrics, Division of Bioethics, University of Washington School of Medicine Scholar, Treuman Katz Center for Pediatric Bioethics
Ethical Issues in Etiological and Biological Research (PDF – 485 KB) Jason Scott Robert, PhD, Franca Oreffice Dean's Distinguished Professor in the Life Sciences, Lincoln Associate Professor of Ethics in Biotechnology and Medicine, Director, Bioethics, Policy, and Law Program, Center for Biology and Society, School of Life Sciences, and Consortium for Science, Policy, and Outcomes, Arizona State University
Autism, Ethics, and the Communication of Scientific Findings in Eras of Uncertainty and Controversy (PDF – 206 KB) Michael Yudell, PhD, MPH, Associate Professor, Drexel University School of Public Health
Ethical Issues in the Conduct and Uptake of ASD Screening Research (PDF – 405 KB) Lonnie Zwaigenbaum, MD, Co-Director, Autism Research Centre, Glenrose Rehabilitation Hospital, Associate Professor, Department of Pediatrics, University of Alberta
Identifying and Communicating Meaningful Genetic Results Used in ASD Screening and Diagnosis (PDF – 206 KB) Fiona Miller, PhD, Associate Professor, Department of Health Policy, Management and Evaluation, Joint Centre for Bioethics, University of Toronto
Lessons Learned from Newborn Screening for Fragile X Syndrome (PDF – 646 KB) Don Bailey, PhD, Distinguished Fellow, RTI International
Ethical Issues in Working with Adults with ASD in Research (PDF – 931 KB) Catherine Lord, PhD, Director, Institute for Brain Development, New York-Presbyterian Hospital, Weill Cornell Medical College and Columbia University Medical Center
The Impact of Genetic Risk Research on Clinical Practice (PDF – 143 KB) Edwin Cook, MD, Professor, Department of Psychiatry, Director of Autism and Genetics, Co-Director, Autism Center of Excellence, Co-Director, Laboratory of Developmental Neuroscience,
Institute of Juvenile Research (IJR), University of Illinois at Chicago
Politics, Prevalence, and the Public Interest (PDF – 450 KB) Jeffrey Brosco, MD, PhD, Professor of Clinical Pediatrics, Associate Director, Mailman Center for Child Development, University of Miami School of Medicine
Effective Partnering with the Autistic Self-Advocacy Community to Advance Intervention and Services Research
(PDF – 457 KB)
Christina Nicolaidis, MD, MPH,
Associate Professor of Medicine and Public Health & Preventive Medicine, Co-Director, Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), Oregon Health & Science University
Dilemmas of Omission in Research about Adults with an Autism Spectrum Disorder
(PDF – 177 KB)
Paul Shattuck, PhD, Assistant Professor, George Warren Brown School of Social Work, Washington University in St. Louis

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