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Non-IACC Reports

2014

Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2010 – MMWR Surveillance Report [HTML version], (PDF – 711 KB)
Centers for Disease Control and Prevention

This scientific research report from the CDC describes the background, methodology and results of a study of 2010 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, which monitors the number of 8-year-old children with ASDs living in diverse communities throughout the United States.

Report to Congress on Activities Related to Autism Spectrum Disorder and Other Developmental Disabilities Under the Combating Autism Act of 2006 and Combating Autism Reauthorization Act of 2011 (FY 2010 - FY 2012) thumbnail

Report to Congress on Activities Related to Autism Spectrum Disorder and Other Developmental Disabilities Under the Combating Autism Act of 2006 and Combating Autism Reauthorization Act of 2011 (FY 2010 - FY 2012) [HTML version], (PDF – 3 MB)
Department of Health and Human Services

This Report to Congress is required by Public Law 112-32 (PDF – 121 KB), the Combating Autism Reauthorization Act of 2011. The report describes progress and expenditures made in autism spectrum disorder (ASD)- related research and services activities across the Department of Health and Human Services, the Department of Education, the Department of Defense, the Environmental Protection Agency and the National Science Foundation from fiscal years 2010- 2012. Read the Full Report

State of the States for Services and Supports for People with ASD (PDF – 3 MB)
Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services

In 2009, the Centers for Medicare & Medicaid Services (CMS) contracted with L&M Policy Research (L&M) and its partners, Truven Health Analytics (formerly the health care business of Thomson Reuters) and the National Association of State Directors of Developmental Disabilities Services, to address the growing need among federal and state policymakers and stakeholders for accurate and comprehensive information regarding available services and supports for people with ASD. The Autism Spectrum Disorders (ASD) State of the States of Services and Supports for People with ASD report stemmed from the Interagency Autism Coordinating Committee's (IACC's) 2010 and 2011 Strategic Plans. The overall goal of this project was to capture information about services for people with ASD across all federal and state-level agencies and offices that could serve as a useful tool and be updated on an as-needed basis. In addition, the project aimed to identify gaps in data.

2013

Federal Autism Activities: Better Data and More Coordination Needed to Help Avoid the Potential for Unnecessary Duplication, GAO-14-16, November 20, 2013 [Highlights HTML version], (Full Report PDF – 3.7 MB)
U.S. Government Accountability Office

This report describes the GAO's assessment of the activities of the Interagency Autism Coordinating Committee and the federal agencies within the Department of Health and Human Services, Department of Education, Department of Defense, National Science Foundation and Environmental Protection Agency from 2007-2013.

Combating Autism Act: HHS Agencies Responded with New and Continuing Activities, Including Oversight [Summary HTML version], (Full Report PDF – 758 KB)
U.S. Government Accountability Office

This report describes how Department of Health and Human Services (HHS) agencies have responded to the Combating Autism Act of 2006 (CAA) by establishing some new autism activities and continuing others. The report focuses on the activities of the National Institutes of Health (NIH), the Health Resources and Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC).

2012

National Center for Health Statistics Data Brief – Diagnostic History and Treatment of School-aged Children with Autism Spectrum Disorder and Special Health Care Needs [HTML version], (PDF – 624 KB)
National Institute of Mental Health, Centers for Disease Control and Prevention and Health Resources and Services Administration

This report describes the results from a 2011 telephone survey of over 4,000 parents or guardians of a child between the ages of 6-17 who had a confirmed diagnosis of ASD, intellectual disability, and/or developmental delay. These survey interviews were a part of the Pathways to Diagnosis and Services Study, sponsored by NIMH, in collaboration with the CDC National Center for Health Statistics (NCHS) and the HRSA Maternal and Child Health Bureau at the Health Resources and Services Administration (HRSA). Key findings were that most children with ASD were diagnosed after age 5 and that they use multiple services and medications.

Restraint and Seclusion Resource Document (PDF – 1.5 MB)
Department of Education

The U.S. Department of Education issued this Resource Document to provide guidance, and describe fifteen principles that States, school districts, school staff, parents, and other stakeholders may find helpful to consider when States, localities, and districts develop practices, policies, and procedures on the use of restraint and seclusion in schools.

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring (ADDM) Network, 14 Sites, United States, 2008 – MMWR Surveillance Report
Centers for Disease Control and Prevention

This scientific research report from the CDC describes the background, methodology and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, which monitors the number of 8-year-old children with ASDs living in diverse communities throughout the United States.

2012 Centers for Disease Control and Prevention Autism and Developmental Disabilities Monitoring (ADDM) Community Report (PDF – 4 MB)
Centers for Disease Control and Prevention

This report from the CDC provides a lay-friendly summary of the background and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, including both compiled information from all sites and a detailed state-by-state breakdown of the information. It also includes sections describing how these data may be used and questions and answers about autism and autism prevalence.

2011

Report to Congress on Activities Related to Autism Spectrum Disorders and Other Developmental Disabilities Under the Combating Autism Act of 2006 (FY 2006-FY 2009) thumbnail

Report to Congress on Activities Related to Autism Spectrum Disorders and Other Developmental Disabilities Under the Combating Autism Act of 2006 (FY 2006-FY 2009) [HTML version], (PDF – 1 MB)
Department of Health and Human Services

This Report to Congress is required by Public Law 109-416, (PDF – 49 KB), the Combating Autism Act of 2006 (CAA). The report describes progress and expenditures made in autism spectrum disorder (ASD) research and services activities since the enactment of the CAA. Read the Full Report | Read the Summary and Highlights

Report on State Services to Individuals with Autism Spectrum Disorders (ASD) (PDF – 884 KB)
Centers for Medicare & Medicaid Services

This report, released on April 1, 2011, assesses the implementation of evidence-based/promising practices through the lens of state experience, summarizing the current state of ASD-related services in Arizona, California, Connecticut, Indiana, Maine, Missouri, New Mexico, Pennsylvania, and Wisconsin. The report describes the types of services and supports provided by state and local governments; the sources of funding for programs; and the policy, staffing and implementation issues to be addressed to effectively serve people with ASD.

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2010 & 2011
National Institutes of Health

This is the third National Institutes of Health (NIH) Biennial Report submitted under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2010 & 2011, Report on Autism Centers of Excellence
National Institutes of Health

This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2010 & 2011, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, PDF – 49 KB). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2010 & 2011, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB).

2010

Autism Spectrum Disorders (ASDs) Services: Final Report on Environmental Scan This link exits the Interagency Autism Coordinating Committee Web site (PDF – 2 MB)
Centers for Medicare & Medicaid Services

This report describes the results of a comprehensive review of scientific evidence regarding the efficacy, effectiveness, safety, and availability of ASD-related psychosocial services and supports for children, transitioning youth, and adults with ASD, including data on the evidence based interventions for people with ASD across the lifespan and data on the costs associated with providing services to people with ASD.

2009

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2008 & 2009
National Institutes of Health

This is the second NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2008 & 2009, Report on Autism Centers of Excellence
National Institutes of Health

This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2008 & 2009, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, PDF – 49 KB). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2008 & 2009, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB).

2007

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2006 & 2007
National Institutes of Health

This is the first NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.

Biennial Report of the Director, National Institutes of Health, Fiscal Years 2006 & 2007, Report on Autism Centers of Excellence
National Institutes of Health

This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2006 & 2007, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, PDF – 49 KB). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2006 & 2007, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB).

2006

Federal Autism Activities: Funding for Research Has Increased, but Agencies Need to Resolve Surveillance Challenges (PDF – 882 KB)
Government Accountability Office

This report provides information on (1) the National Institutes of Health's (NIH) and the Centers for Disease Control and Prevention's (CDC) autism activities and these agencies' funding of autism activities, (2) programs that federal agencies have under way to support services for people with autism and concerns related to providing services, and (3) coordination of federal autism activities.

2005

Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2005)
Department of Health and Human Services

This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
GAO Report: Special Education – Children with Autism (PDF – 615 KB)
Government Accountability Office

This report describes the trend in the number of children diagnosed with autism served under IDEA, the services provided to these children, the estimated per pupil expenditures for educating children with autism, and approaches to their education.

2004

Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2004)
Department of Health and Human Services

This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".

2003

Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2003)
Department of Health and Human Services

This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".

Autism Summit Conference Summary, November 2003
Department of Health and Human Services and Department of Education

Complementing the activities of the IACC, the Department of Health and Human Services and the Department of Education sponsored an Autism Summit Conference. The summit provided a public forum to disseminate, evaluate, and integrate the latest practice- and science-based autism information among Federal, academic, and community participants. The summit included keynote addresses from public officials and sessions focused on issues such as implementation of optimal services, early screening and diagnosis, and biomedical research.

2002

Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2002)
Department of Health and Human Services

This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".

2001

Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2001)
Department of Health and Human Services

This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
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