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Report to Congress on Activities Related to Autism Spectrum Disorder and Other Developmental Disabilities Under the Combating Autism Act of 2006 and Combating Autism Reauthorization Act of 2011 (FY 2010 - FY 2012)

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Appendix iii. CDC-supported Autism Publications (2010 to August 2013)

Anderson C, Law JK, Daniels A, Rice C, Mandell DS, Hagopian L, Law PA. Occurrence and family impact of elopement in children with autism spectrum disorders. This link exits the Interagency Autism Coordinating Committee Web site Pediatrics. 2012 Nov;130(5):870-7. [PMID: 23045563]

Atladóttir HÓ, Henriksen TB, Schendel DE, Parner ET. Autism after infection, febrile episodes, and antibiotic use during pregnancy: an exploratory study. This link exits the Interagency Autism Coordinating Committee Web site Pediatrics. Dec;130(6):e1447-54. [PMID: 23147969]

Atladóttir HÓ, Henriksen TB, Schendel DE, Parner ET. Using maternally reported data to investigate the association between early childhood infection and autism spectrum disorder: the importance of data source. Paediatric and Perinatal Epidemiology. July 2012;26(4):373-85. [PMID: 22686389]

Atladóttir HÓ, Schendel DE, Lauritsen MB, Henriksen TB, Parner ET. Patterns of contact with hospital for children with an autism spectrum disorder: a Danish register-based study. Journal of Autism Developmental Disorders. 2012 Aug;42(8):1717-28. [PMID: 22160299]

Atladóttir HÓ, Thorsen P, Østergaard L, Schendel DE, Lemcke S, Abdallah M, Parner ET. Maternal infection requiring hospitalization during pregnancy and autism spectrum disorders. Journal of Autism and Developmental Disorders. 2010 Dec;40(12):1423-30. [PMID: 20414802]

Avchen R, Wiggins LD, Devine O, Van Naarden-Braun K, Rice C, Hobson N, Schendel D, Yeargin-Allsopp M. Evaluation of a records-review surveillance system used to determine the prevalence of autism spectrum disorders. Journal of Autism and Developmental Disorders. Feb 2011;41(2):227-36. [PMID:20568003]

Berry RJ, Crider KS, Yeargin-Allsopp M. Periconceptional folic acid and risk of autism spectrum disorders. Journal of the American Medical Association. Feb 13;309(6):611-3. [PMID: 23403688]

Boyle CA, Boulet S, Schieve L, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD. Trends in the Prevalence of Developmental Disabilities in US Children, 1997 - 2008. This link exits the Interagency Autism Coordinating Committee Web site Pediatrics. 2011 Jun;127(6):1034-42. [PMID: 21606152]

Centers for Disease Control and Prevention. Prevalence of Autism Spectrum Disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006. Morbidity and Mortality Weekly Report Surveillance Summaries. December 18, 2009;58(Vol. 10):1-20. [PMID: 20023608]

Centers for Disease Control and Prevention. Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report. March 30, 2012. 61(SS03); 1-19. [PMID: 22456193]

Cheely CA, Carpenter LA, Letourneau EJ, Nicholas JS, Charles J, King LB. The prevalence of youth with autism spectrum disorders in the criminal justice system. Journal of Autism and Developmental Disorders. 2012 Sep;42(9):1856-62. [PMID: 22187108]

Christensen J, Grønborg TK, Sørensen MJ, Schendel D, Parner ET, Pedersen LH, Vestergaard M. Prenatal valproate exposure and risk of autism spectrum disorders and childhood autism: a population-based study. Journal of the American Medical Association. 2013 Apr 24;309(16):1696-703. [PMID: 23613074]

Durkin MS, Maenner MJ, Meaney FJ, Levy SE, Diguiseppi C, Nicholas JS, Kirby RS, Pinto-Martin JA, Schieve LA. Socioeconomic inequality in the prevalence of autism spectrum disorder: evidence from a U.S. cross-sectional study., This link exits the Interagency Autism Coordinating Committee Web site PLoS One. July 12, 2010;5(7):e 11551. [PMID: 20634960]

Giarelli E, Wiggins LD, Rice CE, Levy SE, Kirby, RS, Pinto-Martin J, Mandell D. Sex differences in the evaluation and diagnosis of autism spectrum disorders among children. Disability and Health Journal. April 2010;3(2):107-116. [PMID: 21122776]

Grinker, R. R., Yeargin-Allsopp, M., and Boyle, C. (2011). Culture and autism spectrum disorders: The impact on prevalence and recognition. In Autism spectrum disorders, edited by D. G. Amaral, G. Dawson, and D. H. Geschwind, pp. 112–136. New York: Oxford University Press, 2011.

Gronborg TK, Schendel DE, Parner ET. Recurrence of autism spectrum disorders in full and half siblings and trends over time: A population-based cohort study. JAMA Pediatr. 2013 Oct;167(10):947-53. [PMID: 23959427]

Hilton CL, Fitzgerald RT, Jackson KM, Maxim RA, Bosworth CC, Shattuck PT, Geschwind DH, Constantino JN. Brief report: Under-representation of African-Americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders. May 2010;40(5):633-9. [PMID: 19936905]

Hoffman K, Kalkbrenner AE, Vieira VM, Daniels JL. The spatial distribution of known predictors of autism spectrum disorders impacts geographic variability in prevalence in central North Carolina. Environmental Health. 2012 Oct 31;11:80. [PMID: 23113973]

Hoffman K, Vieira VM, Daniels JL. Brief Report: Diminishing Geographic Variability in Autism Spectrum Disorders Over Time? Journal of Autism and Developmental Disorders. 2013 Aug 20. [Epub ahead of print] [PMID: 23959585]

Hvidtjørn D, Grove J, Schendel D, Schieve LA, Sværke C, Ernst E, Thorsen P. Risk of autism spectrum disorders in children born after assisted conception: a population-based follow-up study. Journal of Epidemiology and Community Health. 2011 Jun; 65(6):497-502. [PMID: 20584728]

Jarquin VG, Wiggins LD, Schieve LA, Van Naarden-Braun K. Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000-2006. Journal of Developmental and Behavioral Pediatrics. Apr;32(3):179-87. [PMID: 21293294]

Johnson NL, Giarelli E, Lewis C, Rice CE. Genomics and Autism Spectrum Disorder. Journal of Nursing Scholarship. 2013;45(1):69-78. [PMID: 23368711]

Kalkbrenner AE, Braun JM, Durkin MS, Maenner MJ, Cunniff C, Lee LC, Pettygrove S, Nicholas JS, Daniels JL. Maternal smoking during pregnancy and the prevalence of autism spectrum disorders, using data from the autism and developmental disabilities monitoring network. Environmental Health Perspectives. 2012 Jul;120(7):1042-8. [PMID: 22534110]

Kalkbrenner AE, Daniels JL, Chen JC, Poole C, Emch M, Morrissey J. Perinatal exposure to hazardous air pollutants and autism spectrum disorders at age 8. Epidemiology. September 2010; 21(5):631-641. [PMID: 20562626]

Kalkbrenner AE, Daniels JL, Emch M, Morrissey J, Poole C, Chen JC. Geographic access to health services and diagnosis with an autism spectrum disorder. Annals of Epidemiology. 2011 Apr;21(4):304-10. [PMID: 21376278]

Kancherla V, Van Naarden Braun K, Yeargin-Allsopp M. Childhood vision impairment, hearing loss and co-occurring autism spectrum disorder. Disability and Health Journal. 2013 Oct;6(4):333-42. [PMID: 24060256]

Lauritsen M, Jorgensen M, Madsen K, Lemcke S, Toft S, Grove J, Schendel D, Thorsen P. Validity of childhood autism in the Danish psychiatric central register - findings from a cohort sample born 1990-1999. Journal of Autism and Developmental Disorders. February 2010; 40(2):139-148. [PMID: 19728067]

Lauritsen MB, Astrup A, Pedersen CB, Obel C, Schendel DE, Schieve L, Yeargin-Allsopp M, Parner ET. Urbanicity and autism spectrum disorders. Journal of Autism and Developmental Disorders. 2013. [PMID: 23807204]

Levy S, Giarelli E, Lee L, Schieve L, Kirby R, Cunniff C, Nicholas J, Rice C. Autism spectrum disorders and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental & Behavioral Pediatrics. May 2010; 31(4):267-275. [PMID: 20431403]

Logan SL, Nicholas JS, Carpenter LA, King LB, Garrett-Mayer E, Charles JM. High prescription drug use and associated costs among Medicaid-eligible children with autism spectrum disorders identified by a population-based surveillance network. Annals of Epidemiology. 2012 Jan;22(1):1-8. [PMID: 22153288]

Lopez M, Schulz EG, Baroud T, Hudson A, Wilson M. J. The Arkansas Autism Developmental Disabilities Monitoring (AR ADDM) project: statewide autism surveillance in a rural state. The Journal of the Arkansas Medical Society. 2012 Mar;108(10):220, 222-4. [PMID: 22479981]

Maenner MJ, Arneson CL, Levy SE, Kirby RS, Nicholas JS, Durkin MS. Brief report: Association between behavioral features and gastrointestinal problems among children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 2012 Jul;42(7):1520-5. [PMID: 22012246]

Maenner MJ, Schieve LA, Rice CE, Cunniff C, Giarelli E, Kirby RS, Lee LC, Nicholas JS, Wingate MS, Durkin MS. Frequency and pattern of documented diagnostic features and the age of autism identification. Journal of the American Academy of Child and Adolescent Psychiatry. 2013 Apr;52(4):401-413. [PMID: 23582871]

Miller JS, Bilder D, Farley M, Coon H, Pinborough-Zimmerman J, Jenson W, Rice CE, Fombonne E, Pingree CB, Ritvo E, Ritvo RA, McMahon WM. Autism Spectrum Disorder Reclassified: A Second Look at the 1980s Utah/UCLA Autism Epidemiologic Study. Journal of Autism and Developmental Disorders. 2013 Jan;43(1):200-10. [PMID: 22696195]

Nicholas JS, Carpenter LA, King LB, Jenner W, Wahlquist A, Logan S, Charles JM. Completeness of case ascertainment for surveillance of autism spectrum disorders using the autism developmental disabilities monitoring network methodology. Disability and Health Journal. 2012 Jul;5(3):185-9. [PMID: 22726859]

Parner ET, Baron-Cohen S, Lauritsen MB, Jørgensen M, Schieve LA, Yeargin-Allsopp M, Obel C. Parental Age and Autism Spectrum Disorders. Annals of Epidemiology. March 12, 2012. 22(3):143-50. [PMID: 22277122]

Peacock G, Amendah D, Ouyang L, Grosse S. Autism spectrum disorders and health care expenditures: The effects of co-occurring conditions. Journal of Developmental and Behavioral Pediatrics. January 2012. 33(1):2-8. [PMID: 22157409]

Perou R, Bitsko RH, Blumberg SJ, Pastor P, Ghandour RM, Gfroerer JC, Hedden SL, Crosby AE, Visser SN, Schieve LA, Parks SE, Hall JE, Brody D, Simile CM, Thompson WW, Baio J, Avenevoli S, Kogan MD, Huang LN. Mental health surveillance among children - United States, 2005-2011., Morbidity and Mortality Weekly Report, Surveillance Summaries. May 2013. [PMID: 23677130]

Pettygrove S, Pinborough-Zimmerman J, Meaney FJ, Van Naarden Braun K, Nicholas J, Miller L, Miller J, Rice C. Predictors of ascertainment of autism spectrum disorders across nine US communities. Journal of Autism and Developmental Disorders. 2013 Aug;43(8):1867-79. [PMID: 23239097]

Pinborough-Zimmerman J, Bakian AV, Fombonne E, Bilder D, Taylor J, McMahon WM. Changes in the administrative prevalence of autism spectrum disorders: contribution of special education and health from 2002-2008. Journal of Autism and Developmental Disorders. 2012 Apr;42(4):521-30. [PMID: 21538173]

Pinborough-Zimmerman J, Bilder D, Bakian A, Satterfield R, Carbone PS, Nangle BE, Randall H, McMahon WM. Sociodemographic risk factors associated with autism spectrum disorders and intellectual disability. Autism Research. 2011 Dec;4(6):438-48. [PMID: 21905245]

Powell KC, Van Naarden Braun K, Singh RH, Shapira SK, Olney RS, Yeargin-Allsopp M. Prevalence of developmental disabilities and receipt of special education services among children with an inborn error of metabolism. Journal of Pediatrics. 2010;156:420-426. [PMID: 19914633]

Rice C, Nicholas J, Baio J, Pettygrove S, Lee L, Van Naarden Braun K, Doernberg N, Cunniff C, Newschaffer C, Meaney FJ, Charles J, Washington A, King L, Kolotos M, Mancilla K, Mervis CA, Carpenter L, Yeargin-Allsopp M. Changes in autism spectrum disorder prevalence in 4 areas of the United States. Disability and Health Journal. July 2010; 3(3):186-201. [PMID: 21122784]

Schendel DE, Diguiseppi C, Croen LA, Fallin MD, Reed PL, Schieve LA, et al. The Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network. Journal of Autism and Developmental Disorders. 2012 Oct;42(10):2121-40. [PMID: 22350336]

Schieve LA, Baio J, Rice CE, Durkin M, Kirby RS, Drews-Botsch C, Miller LA, Nicholas JS, Cunniff C. Risk for cognitive deficit in a population-based sample of U.S. children with autism spectrum disorders: Variation by perinatal health factors. Disability and Health Journal. July 2010; 3(3):202-212. [PMID: 21122785]

Schieve LA, Boulet SL, Blumberg SJ, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, Rice C. Association between parental nativity and autism spectrum disorder among US-born non-Hispanic white and Hispanic children, 2007 National Survey of Children's Health. Disability and Health Journal. January 2012. 5(1):18-25. [PMID: 22226294]

Schieve LA, Boulet SL, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, Blumberg SJ, Rice C. Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children's Health. Disability and Health Journal. 2011 Jul;4(3):143-52. [PMID: 21723521]

Schieve LA, Rice C, Devine O, Maenner MJ, Lee LC, Fitzgerald R, Wingate MS, Schendel D, Pettygrove S, Van Naarden Braun K, Durkin M. Have Secular Changes in Perinatal Risk Factors Contributed to the Recent Autism Prevalence Increase? Development and Application of a Mathematical Assessment Model. Annals of Epidemiology. Dec;21(12):930-45. [PMID: 22000328]

Schieve LA, Rice C, Yeargin-Allsopp M, Boyle CA, Kogan MD, Drews C, Devine O. Parent-Reported Prevalence of Autism Spectrum Disorders in US-Born Children: An Assessment of Changes within Birth Cohorts from the 2003 to the 2007 National Survey of Children's Health. Maternal and Child Health Journal. 2012 Apr;16 Suppl 1:S151-7. [PMID: 22476793]

Sell NK, Giarelli E, Blum N, Hanlon AL, Levy SE. A comparison of autism spectrum disorder DSM-IV criteria and associated features among African American and white children in Philadelphia County. Disability and Health Journal. 2012 Jan;5(1):9-17. [PMID: 22226293]

Tang YL, Guo Y, Lee LC, Rice CE, Wang YF, Cubells JF, Wu YY. Autism Diagnostic Observation Schedule (ADOS)--A Standardized direct observation assessment for autism spectrum disorders. This link exits the Interagency Autism Coordinating Committee Web site International Journal of Psychiatry. 2010:37(1). Please note that this publication is in Mandarin Chinese.

Thomas P, Zahorodny W, Peng B, Kim S, Jani N, Halperin W, Brimacombe M. The association of autism diagnosis with socioeconomic status. Autism. 2012 Mar;16(2):201-13. [PMID: 21810908]

Wiggins LD, Baio J, Schieve L, Lee LC, Nicholas J, Rice CE. Retention of autism spectrum diagnoses by community professionals: findings from the autism and developmental disabilities monitoring network, 2000 and 2006. Journal of Developmental and Behavioral Pediatrics. June 2012;33(5):387-95. [PMID: 22580734]

Wiggins LD, Robins DL, Yeargin-Allsopp M. Short report: Improving record-review surveillance of young children with an autism spectrum disorder. Autism. 2013 Sep;17(5):623-9. [PMID: 22987886]



NIH publication No. 14-8012

Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
U.S. Department of Health and Human Services, Office of Autism Research Coordination, National Institutes of Health (On behalf of the Office of the Secretary). Report to Congress on Activities Related to Autism Spectrum Disorder and Other Developmental Disabilities Under the Combating Autism Act of 2006 and Combating Autism Reauthorization Act of 2011 (FY 2010 – FY 2012). February 2014. Retrieved from the Department of Health and Human Services Interagency Autism Coordinating Committee website at: http://iacc.hhs.gov/reports/reports-to-congress/FY2010-2012/index.shtml



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