|Project Title||Principal Investigator||Institution|
|ASD Wandering Survey||No PI listed||Kennedy Krieger Institute|
|Electronic location reporting for individuals with cognitive disabilities||Sherwood, Tom||Intellispeak, LLC|
|Victimization, pragmatic language, and social and emotional competence in adolescents with ASD||Kelley, Elizabeth||Queen's University|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Support two studies to examine health, safety, and mortality issues for people with ASD by 2012.
IACC Recommended Budget: $4,500,000 over 3 years
|5.S.D. Funding: The recommended budget was not met; the funding allocated to projects specific to this objective falls far short of the recommendation.
Progress: More work is needed on this objective; studies have been funded in this area (e.g., wandering, victimization), but they are small and they do not address all issues within this objective.
Remaining gaps, needs and opportunities: There may be some projects in other Strategic Plan Questions that are related to this objective (i.e., the Utah epidemiological study coded to Question 7 that examines health risks and causes of mortality). There is ongoing data mining of existing data sets to identify risks, new methods of prevention, methods of recovery, and best practices. Best practices need to be developed to respond to wandering (prevention, response, and search). A "practice to research" model, where data are collected in the process of delivering services, would also be appropriate. One issue that is underrepresented in the portfolio is sexual/reproductive health communication for adolescents and adults with ASD. In general, adult needs are not well-represented in the current research.