|Project Title||Principal Investigator||Institution|
|State of the States for people with ASD||L&M Policy Research, Thompson Reuters, and the National Association of State Directors of Developmental Disabilities||Centers for Medicare & Medicaid Services (CMS)|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Conduct an annual "State of the States" assessment of existing State programs and supports for people and families living with ASD by 2011. |
IACC Recommended Budget: $300,000 each year (revised in 2010)
|7.B. Funding: The recommended budget was partially met. |
Progress: Centers for Medicare & Medicaid Services (CMS) conducted a "State of the States" project and released a report summarizing the results of the study in 2014. The book Autism Services Across America by Dr. Peter Doehring also reviews existing programs and services across the states.
Remaining Gaps, Needs, and Opportunities: The initial State of the States study, overseen by CMS, was completed and published in 2014, but the objective calls for an annual study. Since the first study required multiple years to complete and since it is not clear if services will change enough yearly to warrant an annual study, this objective should be revisited with CMS to understand whether an annual study is the best approach.