Strategic Plan Objective Detail
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Office of Autism Research Coordination (OARC) logo

Question 7: Objective H  

$2,453,253.00
Fiscal Year: 2010

Yellow dot: Objective has some degree of funding, but less than the recommended amount.7H. Create mechanisms to specifically support the contribution of data from 90 percent of newly initiated projects to the National Database for Autism Research (NDAR) and link NDAR with other existing data resources by 2012. IACC Recommended Budget: $6,800,000 over 2 years.

Download 2010 Question 7: Objective H projects (EXCEL)
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Project Title Principal Investigator Institution
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR Lajonchere, Clara Autism Speaks (AS)
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR (supplement) Lajonchere, Clara Autism Speaks (AS)
National Database on Autism Research (NDAR) No PI listed Center For Information Technology

Objective Cumulative Funding Table

IACC Strategic Plan Objective 2008 2009 2010 2011 2012 Total
Create mechanisms to specifically support the contribution of data from 90% of newly initiated projects to the National Database for Autism Research (NDAR), and link NDAR with other existing data resources by 2012.

IACC Recommended Budget: $6,800,000 over 2 years
N/A

7.H
$1,932,996
2 projects

7.H
$2,453,253
3 projects

7.H
$1,517,596
1 project

7.H
$3,679,808
5 projects

$9,583,653
7.H. Funding: The recommended budget for this objective was met.

Progress: The objective to create mechanisms to support the contribution of data from newly initiated projects to NDAR has been met, and NDAR has linked with several other existing data sources such as the ATP, AGRE and IAN. In 2012, 81% of NIH-funded extramural studies were contributing data to NDAR. All NIH grants have terms that require linking of data to NDAR.

Remaining Gaps, Needs and Opportunities: Infrastructure will need continued development to enable greater availability of standardized data and analytical tools for cloud computing. IAN data collection could be expanded to include locations of residence to enable geographic data collection on environmental exposures.