|Project Title||Principal Investigator||Institution|
|Autism in the second half of the lifespan: Behavior, daily living, service needs||Carper, Ruth||University of California, San Diego|
|Transition to adulthood: Service utilization and determinants of functional outcomes||Shattuck, Paul||Washington University in St. Louis|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Launch at least two studies to assess and characterize variation in the quality of life for adults on the ASD spectrum as it relates to characteristics of the service delivery system (e.g., safety, integrated employment, post-secondary educational opportunities, community inclusion, self-determination, relationships, and access to health services and community-based services) and determine best practices by 2012. |
IACC Recommended Budget: $5,000,000 over 3 years
|6.S.A. Funding: The recommended budget was partially met. |
Progress: More than two projects have been funded in this area, though the end goal of determining best practices has not yet been met. Still, this area is moving in the right direction as funding and projects have increased over time.
Remaining gaps, needs and opportunities: There is a great need to develop standardized measures for quality of life for people with ASD, across both range of ability and lifespan.