|Project Title||Principal Investigator||Institution|
|Understanding the delay in the diagnosis of autism||Mandell, David||University of Pennsylvania|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Conduct at least three studies to identify reasons for the health disparities in accessing early screening and diagnosis services, including identification of barriers to implementation of and access to screening, diagnosis, referral, and early intervention services among diverse populations, as defined by socioeconomic status, race, ethnicity, and gender of the child, by 2012. |
IACC Recommended Budget: $2,000,000 over 2 years
|N/A ||1.S.C |
|1.S.C. Funding: The recommended budget was partially met. |
Progress: The projects supported are only a beginning and more needs to be done to address this objective.
Remaining Gaps, Needs, and Opportunities: The studies coded to this objective do not focus on identifying reasons for early screening and diagnosis disparities; instead, they are aimed at developing tools to address these disparities. The progress in this area is poor for autism relative to other disease fields, and the more sophisticated approaches employed in fields such as AIDS prevention should be applied to autism. More work should be done to identify the reasons for disparities and to validate the tools that are being developed. A barrier to progress is the need for qualitative studies and the difficulty in securing funding for such studies.