|Project Title||Principal Investigator||Institution|
|Use of a family navigator in families with children newly diagnosed with autism spectrum disorder||Augustyn, Marilyn||Boston Medical Center|
|Racial/ethnic disparities in family burden & health care of children with autism||Parish, Susan||Brandeis University|
|The effects of breaks in services on skill regression in children with ASD||Tarbox, Jonathan||Center for Autism and Related Disorders (CARD)|
|Medical service utilization by Medicaid-eligible children with autism in Georgia: An analysis of one year of claims and provider data||Crimmins, Daniel||Georgia State University Research Foundation|
|The relationship between state EPSDT policies, well-child care and age of autism||Daniels, Amy||Johns Hopkins University|
|A parent to parent model of support and service coordination for families of preschool age children with ASD||Bruder, Mary Beth||University of Connecticut Health Center|
|Autism insurance policy and access to care for children with autism: A state level analysis||Thomas, Kathleen||University of North Carolina at Chapel Hill|
|Interstate variation in healthcare utilization among children with ASD||Mandell, David||University of Pennsylvania|
|Autism in urban context: Linking heterogeneity with health and service disparities||Solomon, Olga||University of Southern California|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Support two studies that assess how variations in and access to services affect family functioning in diverse populations, including underserved populations, by 2012. |
IACC Recommended Budget: $1,000,000 over 3 years
|5.S.A. Funding: The recommended budget was met. Significantly more than the recommended minimum budget was allocated to projects specific to this objective. |
Progress: The initial target of two studies was met, with 1-9 projects supported per year, but more work is still needed in this area.
Remaining gaps, needs and opportunities: The projects under this objective cover several topics related to family functioning and health disparities, but not the full breadth of the gaps mentioned in the objective. This objective, as written, may be too broad. Work is still needed to understand why underserved populations have poorer outcomes and what can be done to close the gaps. We need to understand what portfolio of services will result in the best outcomes for different populations. To address these questions, a qualitative approach (i.e., needs assessment or survey) may be needed to understand the context of barriers faced by different groups. Research on disparities needs to move beyond observational studies to experimental designs to see what approaches work best in different populations and settings.