|Project Title||Principal Investigator||Institution|
|State ASD Demonstration Program||Birch, Stephanie||Alaska Department of Health and Social Services|
|Meeting the needs of individuals with autism spectrum disorders through comprehensive services (9-State Study)||IMPAQ International||Centers for Medicare & Medicaid Services (CMS)|
|State ASD Demonstration Program||Parlin, Leolinda||Hawai'i Pediatric Association Research & Education Foundation|
|State ASD Demonstration Program||Noyes, Donna||Health Research, Inc./New York State Department of Health|
|Evaluating the impact of early intervention services on young children with autism spectrum disorders and their families: A state systems approach||Noyes, Donna||Health Research, Inc./New York State Department of Health|
|State ASD Demonstration Program||Wall, Toni||Maine Department of Health and Human Services, Title V Children with Special Health Care Needs Program|
|State ASD Demonstration Program||Garneau, Deborah||Rhode Island Department of Health|
|State ASD Demonstration Program||Pitre, Jennifer Bolden||Statewide Parent Advocacy Network of New Jersey|
|State ASD Demonstration Program||Nyre, Joseph||The Hope School|
|State ASD Demonstration Program||Farmer, Janet||University of Missouri Board of Curators|
|State ASD Demonstration Program||McClain, Catherine||University of New Mexico Health Sciences Center|
|State ASD Demonstration Program||Williams, Holly||Utah Department of Health|
|State ASD Demonstration Program||Hassler, Carol||Vermont Department of Health|
|State ASD Demonstration Program||Nardella, Maria||Washington State Department of Health|
|State ASD Demonstration Program||Whitehead, Amy||Wisconsin Department of Health & Family Services|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Implement and evaluate five models of policy and practice-level coordination among State and local agencies to provide integrated and comprehensive community-based supports and services that enhance access to services and supports, self-determination, economic self-sufficiency, and quality of life for people with ASD across the spectrum and their families, (which may include access to augmentative and alternative communication [AAC] technology), with at least one project aimed at the needs of transitioning youth and at least one study to evaluate a model of policy and practice-level coordination among State and local mental health agencies serving people with ASD, by 2015.
IACC Recommended Budget: $25,000,000 over 5 years (revised in 2011)
|5.S.C. Funding: The recommended budget was partially met.
Progress: Progress has been made but the objective is not fully achieved, as it is underfunded and the projects do not cover all of the issues mentioned in the objective.
Remaining gaps, needs and opportunities: Studying services coordination is very difficult and it is hard to define outcomes. State to state dissemination is very limited and fragmented. Also, state policies often are translated to practice very differently in different areas and counties. State and local services programs also suffer from a lack of knowledge in how to engage and sustain community and partnerships. A pairing of existing state and local services programs(including those that may be participating in federally-funded state demonstration programs) with research funding for evaluation would be the most cost-effective way to collect and analyze data about the implementation of models of coordination. For example, building research projects onto existing state demonstration programs and supporting the development of partnerships between academic researchers and state agencies to study models of policy implementation would be ways to advance this type of research.