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Question 4: Long-term Objective D  

$8,756,832.00
Fiscal Year: 2010

New! Green dot: Objective has greater than or equal to the recommended funding.4LD. Support at least five community-based studies that assess the effectiveness of interventions and services in broader community settings by 2015. Such studies may include comparative effectiveness research studies that assess the relative effectiveness of: o Different and/or combined medical, pharmacological, nutritional, behavioral, service-provision, and parent- or caregiver-implemented treatments; o Scalable early intervention programs for implementation in underserved, low-resource, and low-literacy populations; and o Studies of widely used community intervention models for which extensive published data are not available. Outcome measures should include assessment of potential harm as a result of autism treatments, as well as positive outcomes. IACC Recommended Budget: $37,500,000 over 5 years.

Download 2010 Question 4: Long-term Objective D projects (EXCEL)
Note: Initial Sort is by Principal Investigator. Sorting by other columns is available by clicking on the desired column header.
Project Title Principal Investigator Institution
Handheld technology to assist students with autism spectrum disorder Tedesco, Robert HandHold Adaptive, LLC
Sibling-mediated social communicative intervention for children with autism spectrum disorder Tsao, Ling-Ling University of Idaho
Development of an intervention to enhance the social competencies of children with Asperger's/high functioning autism spectrum disorders Volker, Martin University at Buffalo, The State University of New York
Efficacy of a parent-mediated intervention for one-year-olds at risk for autism Watson, Linda University of North Carolina at Chapel Hill
Social communication and symbolic play intervention for preschoolers with autism Watson, Linda University of North Carolina at Chapel Hill
Effects of parent-implemented intervention for toddlers with autism spectrum disorders Wetherby, Amy; Lord, Catherine Florida State University; University of Michigan
Software to enrich the noun lexicons and lexical learning of children with autism Wilson, Mary Sweig Laureate Learning Systems, Inc.

Objective Cumulative Funding Table

IACC Strategic Plan Objective 2008 2009 2010 2011 2012 Total
Support at least five community-based studies that assess the effectiveness of interventions and services in broader community settings by 2015. Such studies may include comparative effectiveness research studies that assess the relative effectiveness of:
  • Different and/or combined medical, pharmacological, nutritional, behavioral, service-provision, and parent- or caregiver-implemented treatments;
  • Scalable early intervention programs for implementation in underserved, low-resource, and low-literacy populations; and
  • Studies of widely used community intervention models for which extensive published data are not available.
Outcome measures should include assessment of potential harm as a result of autism treatments, as well as positive outcomes.

IACC Recommended Budget: $37,500,000 over 5 years
N/A

N/A

4.L.D
$8,756,832
32 projects

4.L.D
$6,296,024
32 projects

4.L.D
$10,186,313
45 projects

$25,239,169
4.L.D. Funding: The recommended budget was partially met, and the annualized recommended budget targets were met for all 3 years since the objective was introduced. Therefore, the funding for this objective is on track.

Progress: 30-45 studies have been supported, which is greater than the recommended minimum of at least five studies. Considerable work has been done under this objective, but these projects do not cover the full scope of interventions in the community. Comparing the large number of studies to the funding suggests that many small studies are being funded rather than fewer large ones.

Remaining Gaps, Needs, and Opportunities: Emphasis on both the evaluation of interventions in controlled/academic settings prior to community based studies and the translation of interventions to community-based settings is key. Understanding of "Type 2 Translation," or transfer of research from academic settings to real-world settings is important, considering barriers to transferring academic-based interventions to clinical groups and communities. Investment is still necessary in the academic setting before successful translation to community-based interventions can occur. For successful T2 translation to underserved communities, cost effectiveness and case coordination or case management is often helpful with uptake. This objective also overlaps considerably with objectives in Question 5. It is important to explore which supports are specifically executed at the community level (vs. home, schools, etc.), and to determine how they are best designed.