|Project Title||Principal Investigator||Institution|
|Ethics of communicating scientific findings on autism risk||Newschaffer, Craig||Drexel University|
|Ethics of communicating scientific findings on autism risk||Newschaffer, Craig||Drexel University School of Public Health|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Begin development of a web-based toolbox to assist researchers in effectively and responsibly disseminating their findings to the community, including people with ASD, their families, and health practitioners by 2011. |
IACC Recommended Budget: $400,000 over 2 years
|N/A ||7.E |
|7.E. Funding: The recommended budget was met. Significantly more than the recommended minimum budget was allocated to projects specific to this objective. |
Progress: The goal of objective has been achieved in terms of efforts to help researchers more effectively disseminate their findings to the community online and in lay-friendly formats, but not through a web-based toolbox. For example, several agencies, organizations and groups (CDC, NIH, Simons Foundation, Autism Speaks, ASF, IAN) publish lay-friendly summaries of recent scientific findings online, as well as lay-friendly versions of their reports. In addition, the "Data from Papers" feature in NDAR connects readers from the Pubmed citation of a study to the actual data deposited in the database.
Remaining Gaps, Needs and Opportunities: Though agencies and organizations are making active efforts to assist researchers with disseminating findings to the community via the web, access to information about research findings remains limited for those communities that are resource-poor and do not have internet access. In addition, the lack of open access to most peer-reviewed journals limits the public's ability to access fully detailed information about new findings.