|Project Title||Principal Investigator||Institution|
|Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR||Lajonchere, Clara||Autism Speaks (AS)|
|National Database on Autism Research (NDAR)||No PI listed||Center for Information Technology|
|IACC Strategic Plan Objective||2008||2009||2010||2011||2012||Total|
|Create mechanisms to specifically support the contribution of data from 90% of newly initiated projects to the National Database for Autism Research (NDAR), and link NDAR with other existing data resources by 2012. |
IACC Recommended Budget: $6,800,000 over 2 years
|N/A ||7.H |
|7.H. Funding: The recommended budget for this objective was met. |
Progress: The objective to create mechanisms to support the contribution of data from newly initiated projects to NDAR has been met, and NDAR has linked with several other existing data sources such as the ATP, AGRE and IAN. In 2012, 81% of NIH-funded extramural studies were contributing data to NDAR. All NIH grants have terms that require linking of data to NDAR.
Remaining Gaps, Needs and Opportunities: Infrastructure will need continued development to enable greater availability of standardized data and analytical tools for cloud computing. IAN data collection could be expanded to include locations of residence to enable geographic data collection on environmental exposures.