Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

A large scale, two phase study to estimate prevalence, and raise awareness, about autism spectrum conditions in India  

Despite being the second most populous country in the world, there is a serious dearth of epidemiological research on autism spectrum disorders (ASD) in India. The current project represents a large-scale attempt to estimate the prevalence of ASD in India by focusing on three major cities. In Year 1, the group proposes to create a central secure online database with phenotypic details and clinical notes of patients between 4-7 years of age, from pediatric outpatient departments of multiple government/charitable and private hospitals in each city. The members of the online database would then be contacted to take part in a screening study using translated versions of the Social Communications Questionnaire (SCQ) and Autism Spectrum Quotient (AQ). Those children who meet the cut-off scores for ASD will then be approached in years 2 and 3 for in-person testing using translated versions of the Autism Diagnostic Observation Schedule (ADOS) and measurement of further socio-cultural variables. These case ascertainment methodologies will be used to conduct a pilot epidemiology study that will result in a multi-city prevalence estimate of ASD in India. In parallel, a structured program to raise autism awareness in the country will be carried out, which will include: a) organizing yearly workshops for medical professionals, teachers, and parents of children with ASD, b) making a documentary film, c) translating existing awareness material into regional languages, and d) assessing awareness about ASD in the general population, both at the beginning and at the end of our program. Project Status
ONGOING

2009

Funder Autism Speaks
Fiscal Year Funding $60,000.00
Project Number 5620
Principal Investigator Mukerji, Shaneel
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Strategic Plan Objective New! Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7J. Develop the personnel and technical infrastructure to assist states, territories, and other countries who request assistance describing and investigating potential changes in the prevalence of ASD and other developmental disabilities by 2013. IACC Recommended Budget: $1,650,000 over 3 years.
Federal or Private? Private
Institution Action for Autism/Creating Connections
State/Country India
Web Link 1 A large scale, two phase study to estimate prevalence, and raise awareness, about autism spectrum conditions in India (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects A large scale, two phase study to estimate prevalence, and raise awareness, about autism spectrum conditions in India | $0.00 | 2010 | 5620
A large scale, two phase study to estimate prevalence, and raise awareness, about autism spectrum conditions in India | $60,000.00 | 2008 | 5620