Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR  

This project will enhance the infrastructure of the Autism Genetic Resource Exchange (AGRE) so that AGRE can serve as a federation site for the National Database for Autism Research (NDAR). AGRE, a program of Autism Speaks, has amassed a robust clinical dataset that includes detailed medical, developmental, morphological, demographic, and behavioral information making it one of the largest systematic repositories of multidisciplinary data for over 4000 ASD individuals and family members. The addition of the comprehensive phenotype and genetic datasets from AGRE will enhance, in both quantity and scope, the knowledge base available to NDAR users, allowing them to advance their analysis and investigation of the underlying causes of autism. Project Status
NEW

2009

Funder National Institutes of Health
Fiscal Year Funding $490,996.00
Project Number 1RC1MH089707-01
Principal Investigator Lajonchere, Clara
Received ARRA Funding? Yes
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Strategic Plan Objective New! Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7H. Create mechanisms to specifically support the contribution of data from 90 percent of newly initiated projects to the National Database for Autism Research (NDAR) and link NDAR with other existing data resources by 2012. IACC Recommended Budget: $6,800,000 over 2 years.
Federal or Private? Federal
Institution Autism Speaks (AS)
State/Country New York
Web Link 1 Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR | $469,084.00 | 2010 | 5RC1MH089707-02
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR (supplement) | $141,029.00 | 2010 | 3RC1MH089707-01S1