Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Measuring quality adjusted life years in children with autism spectrum disorders  

Autism spectrum disorders (ASDs) are characterized by impairments in social skills, communication, and cognitive and behavioral functioning. Successful interventions for children with ASDs thus have the potential to not only affect outcomes of the child but may include substantial health benefits for the family. Guidelines for evaluating the cost-effectiveness of services recommend using the cost per quality adjusted life year (QALY) gained. To date, no studies have attempted to evaluate whether instruments to measure QALYS in children with ASDs are sensitive to the condition. In addition, research is needed to account for family effects in cost- effectiveness analysis. This research will address these issues by evaluating the sensitivity and psychometric properties of alternative generic instruments for measuring QALYS in children with ASDs and by determining whether caregiver QALYS should be incorporated into the cost-effectiveness model. Findings from the study will improve methods to accurately assess the cost-effectiveness of interventions to treat children with ASDs and assist in the translation of experimental findings into evidence-based policy for decision making. Project Status
NEW

2009

Funder National Institutes of Health
Fiscal Year Funding $441,724.00
Project Number 1R01MH089466-01
Principal Investigator Tilford, John
Received ARRA Funding? Yes
Strategic Plan Question Question 1: When Should I Be Concerned? (Diagnosis)
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 1LC. Identify and develop measures to assess at least three "continuous dimensions" (i.e., social reciprocity, communication disorders, and repetitive/restrictive behaviors) of ASD symptoms and severity that can be used by practitioners and/or families to assess response to intervention for people with ASD across the lifespan by 2016. IACC Recommended Budget: $18,500,000 over 5 years.
Federal or Private? Federal
Institution Arkansas Children's Hospital Research Institute
State/Country Arkansas
Web Link 1 Measuring quality adjusted life years in children with autism spectrum disorders (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Measuring quality adjusted life years in children with autism spectrum disorders | $528,985.00 | 2010 | 7R01MH089466-02
Measuring quality adjusted life years in children with autism spectrum disorders (supplement) | $4,852.00 | 2010 | 3R01MH089466-01S1