Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Quality of life for children with autism spectrum disorders and their parents  

Health-related quality of life (HRQoL) is a multidimensional measure of the effects of illness on a patient, as perceived by the individual or proxy-reporter. This study will assess the HRQoL of children with autism spectrum disorder (ASD) and that of their parents. Specifically, this study will assess the relationship of children's HRQoL with measures of clinical severity, sleep disorders, behavior, and executive functioning. This study will also examine the relationship between parental quality of life scores with the child's HRQoL and the child's clinical characteristics. A final goal will be to develop an autism-specific HRQoL measure for children. This study will use the Autism Treatment Network (ATN), a multi-site collaborative program focused on establishing standards of medical care for ASD children. The ATN enrolls large numbers of children nationwide and provides a data registry comprised of standardized measures. Project Status
ONGOING

2010

Funder Autism Speaks
Fiscal Year Funding $127,500.00
Current Award Period 2007-2010
Project Number 1954
Principal Investigator Kuhlthau, Karen
Received ARRA Funding? No
Strategic Plan Question Question 5: Where Can I Turn For Services? (Services)
Subcategory Family Well-Being and Safety
Strategic Plan Objective 5O. Not specific to Question 5 objectives
Federal or Private? Private
Institution Massachusetts General Hospital
State/Country Massachusetts
Web Link 1 Quality of life for children with autism spectrum disorders and their parents (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Quality of life for children with autism spectrum disorders and their parents | $150,000.00 | 2008 | 1954
Quality of life for children with autism spectrum disorders and their parents | $150,000.00 | 2009 | 1954