Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

State of the States for people with ASD  

Note: From 2011 onwards, CMS indicated a change in project title to "State of the States in Services and Supports for Persons with Autism Spectrum Disorder" to reflect the name of the study report.

The State of the States project is broadly reviewing existing State programs and supports provided to autism spectrum disorder (ASD) people and their families across all 50 States and the District of Columbia. The project addresses 3 central questions: 1) What type of publicly funded services and supports are available for people with ASD? 2) How many people receive the supports? and 3) How are States improving diagnosis and services for people with ASD, regardless of payment source? Using quantitative and qualitative research methodologies, the project will collect information on how many people access ASD-related supports and services in a variety of service systems, including Social Security, the educational system, early intervention and employment services, institutional services, and Home and Community-Based Services. The content of service provision will be assessed by interviews with both State agencies and ASD stakeholders designed to address the types of services/supports available, extent of insurance coverage for those service/supports, leisure/recreational opportunities offered, staff training, and overall State policy infrastructure, among others. Quantitative data collection has been completed, and the interview process is underway. The project is to be completed at the end of 2012. The results will provide the first comprehensive analysis of ASD services and supports available through State and Federal programs. Project Status
ONGOING

2010

Funder Centers for Medicare & Medicaid Services
Fiscal Year Funding $197,128.00  Note: The 2010 funding amount was corrected to $92,025.81 after completion of the 2010 Portfolio Analysis.
Current Award Period 2009-2013
Project Number 500-2006-00009I/HHSM-500-T0002
Principal Investigator L&M Policy Research, Thompson Reuters, and the National Association of State Directors of Developmental Disabilities
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Subcategory Research Infrastructure
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7B. Conduct an annual "State of the States" assessment of existing State programs and supports for people and families living with ASD by 2011. IACC Recommended Budget: $300,000 each year.
Federal or Private? Federal
Institution Centers for Medicare & Medicaid Services (CMS)
State/Country Maryland
Web Link 1 No URL available.
Web Link 2 No URL available.
Web Link 3 No URL available.
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