Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Ethics of communicating scientific findings on autism risk  

Research on the causes of autism spectrum disorder (ASD) has become more complex, involving both genetic and environmental risks. In addition, the public debate over the causes of ASD is intense, making clear and sensitive communication of scientific findings critical. Such ethical considerations have seldom received much attention in the communication of findings on autism risks. To address this shortcoming, a two-day workshop of leading ASD experts in the fields of scientific research, clinical treatment, bioethics, genetic counseling, scientific news reporting, advocacy, education, and community health will be held. The goals of this workshop are to: (1) discuss the ethical issues relating to ASD research and communication of those results; (2) recommend specific policies relating to the ethics of communicating ASD research findings to the public; and (3) build new partnerships among diverse groups of ASD experts to improve sharing of ASD research findings. This type of workshop is unique in gathering together such a diverse group of ASD professionals to promote cooperation in insuring communication of autism research findings to the public with sensitivity in a clear and ethical manner. The workshop will have approximately thirty invited participants and will be open to the general public. Project Status
ONGOING

2010

Funder Autism Speaks
Fiscal Year Funding $390,134.00
Current Award Period 2009-2012
Project Number 5938
Principal Investigator Newschaffer, Craig
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Subcategory Research Recruitment and Clinical Care
Strategic Plan Objective Green dot: Objective has greater than or equal to the recommended funding. 7E. Begin development of a web-based toolbox to assist researchers in effectively and responsibly disseminating their finding to the community, including people with ASD, their families, and health practitioners by 2011. IACC Recommended Budget: $400,000 over 2 years.
Federal or Private? Private
Institution Drexel University School of Public Health
State/Country Pennsylvania
Web Link 1 Ethics of communicating scientific findings on autism risk (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Ethics of communicating scientific findings on autism risk | $25,000.00 | 2009 | 1R13ES017394-01
Ethics of communicating scientific findings on autism risk | $305,662.90 | 2009 | 5938
Ethics of communicating scientific findings on autism risk | $25,000.00 | 2008 | 5938