Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Family adaptation to fragile X syndrome adolescents and adults  

Given the centrality of the family in the life of a person with fragile X syndrome (FXS), the reliance of the service system on the family as the primary source of support, and the stress of lifelong family caregiving, there is an urgent public health and scientific need to understand the range of factors that influence the adaptation of individuals with FXS and the well-being of their families.


Funder National Institutes of Health
Fiscal Year Funding $317,631.00
Project Number P30HD003110-41S1
Principal Investigator Seltzer, Marsha
Strategic Plan Question Question 6: What Does the Future Hold? (Lifespan)
Strategic Plan Objective 6O. Not specific to Question 6 objectives
Federal or Private? Federal
Institution University of North Carolina at Chapel Hill
State/Country North Carolina
Web Link 1 No URL available.
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects N/A