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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Examining the Effectiveness of a Latino Parent Leadership Support Project

Principal Investigator

Principal Investigator

Burke, Meghan

Description

Description

Although many parents struggle to ensure that their children with disabilities receive appropriate educational services, Spanish speaking parents of children with disabilities especially face logistical and attitudinal obstacles in developing strong partnerships with the school as well as retaining needed services. Still further, families of children with autism spectrum disorder (ASD) (versus other types of disabilities) are most likely to encounter conflicts with the school system. Using a randomized control trial, the purpose of this project is to examine the effectiveness of a Latino Parent Leader Support Project (LPLSP) in increasing empowerment, communication with the school, special education knowledge, student progress, quality of the family-school partnership, and satisfaction with services among Spanish-speaking, Latino parents of students with autism. We will also examine the effect of the training upon participation in Individualized Education Program (IEP) meetings. We expect that each of the forty graduates of the LPLSP will support four additional Spanish-speaking families of children with autism. We will conduct pre and post surveys with these families to determine the effectiveness of the LPLSP graduate upon the families’ satisfaction with services, empowerment, and special education knowledge. Thus, in addition to the 40 LPLSP graduates, an additional 160 families will be served by this project.

Funder

Funder

Organization for Autism Research

Fiscal Year Funding

Fiscal Year Funding

30000

Current Award Period

Current Award Period

2015-2016

Strategic Plan Question

Strategic Plan Question

Question 4: Which Treatments And Interventions Will Help?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 4LD. Support at least five community-based studies that assess the effectiveness of interventions and services in broader community settings by 2015. Such studies may include comparative effectiveness research studies that assess the relative effectiveness of: o Different and/or combined medical, pharmacological, nutritional, behavioral, service-provision, and parent- or caregiver-implemented treatments; o Scalable early intervention programs for implementation in underserved, low-resource, and low-literacy populations; and o Studies of widely used community intervention models for which extensive published data are not available. Outcome measures should include assessment of potential harm as a result of autism treatments, as well as positive outcomes. IACC Recommended Budget: $37,500,000 over 5 years.

Project Link

Project Link

Examining the Effectiveness of a Latino Parent Leadership Support Project (External web link)

Institution

Institution

University of Illinois

State/Country

State/Country

Illinois

Project Number

Project Number

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

N/A

 
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