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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Family patterns in diagnosis of children with autism spectrum disorders (ASD)

Principal Investigator

Principal Investigator

Sicherman, Nachum

Description

Description

The average age of autism diagnosis in the United States is close to five years, and even later among children from ethnic minority backgrounds. Such late diagnosis can limit the benefits of behavioral intervention, which has been shown to lead to dramatic improvements in IQ scores and adaptive behavior. A wide range of ethnic, cultural, linguistic, and socioeconomic factors may lead parents, family members, or health care professionals to ignore or play down concerns about a child’s linguistic and social development, thus delaying diagnosis. In addition, while the nuclear family is key in the diagnosis of ASD, other family members and individuals close to the child, can be instrumental in early diagnosis. However, survey data from such individuals is limited. Our pilot survey of over 100 “friends and family” of children with ASD revealed that 62% of such individuals suspected a developmental delay before the parents. This strongly suggests that important sources of information that could aid in early diagnosis are being missed. Building on our pilot study, we propose to conduct comprehensive surveys of 5,000 families aiming to investigate causes of delays in diagnosis of ASD and explore correlations between ethnic, demographic and socio-economic groups, diagnostic categories, and family configurations with delays in diagnosis. The research has direct benefits for individuals on the autism spectrum, their families, and related service providers.

Funder

Funder

Organization for Autism Research

Fiscal Year Funding

Fiscal Year Funding

10000

Current Award Period

Current Award Period

2014-2015

Strategic Plan Question

Strategic Plan Question

Question 1: When Should I Be Concerned?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 1SC. Conduct at least three studies to identify reasons for the health disparities in accessing early screening and diagnosis services, including identification of barriers to implementation of and access to screening, diagnosis, referral, and early intervention services among diverse populations, as defined by socioeconomic status, race, ethnicity, and gender of the child, by 2012. IACC Recommended Budget: $2,000,000 over 2 years.

Project Link

Project Link

Family patterns in diagnosis of children with autism spectrum disorders (ASD) (External web link)

Institution

Institution

Columbia University

State/Country

State/Country

New York

Project Number

Project Number

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Family patterns in diagnosis of children with autism spectrum disorders (ASD) | 20000 | 2014 |

 
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