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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

 A Sociology of Testing, Diagnosis and Autism Spectrum Disorder

Principal Investigator

Principal Investigator

Maynard, Douglas

Description

Description

Introduction The purpose of this project is to study the testing and diagnosis of children who are being considered for an Autism Spectrum Disorder (ASD). Since the early 1990s, there has been a huge upsurge in ASD diagnosis. Sociological and epidemiological studies can account for much of the increased prevalence. However, little attention has been paid to the concrete ways in which clinicians and the child are engaged in the examination process. Attention also needs to be given to what happens after completing the exams with a child; how clinicians consult with one another about their findings, determine a diagnosis, and present that diagnosis to parents and other caretakers. Such considerations should be extended to how family, legal, economic and other factors affect diagnosis. Intellectual Merit There are three parts to our study corresponding to the three sets of concerns indicated above. The first aim is to do a sociology of testing, understanding the organized social interactions and collaborative skills by which clinicians and children engage in examination tasks. The second aim focuses on the narrations associated with what clinicians have found in testing, the discussion of those findings and attempts resolve any discrepancies among themselves, and the presentation of their diagnostic conclusions to family members and other caretakers such as educators. The third aim is to explore how, in their testing and diagnostic determinations, clinicians and caretakers may orient to social contexts surrounding autism diagnosis including family, legal, educational, administrative, and economic factors. Potential Broader Impacts This study of interactions in the testing and diagnostic process potentially means better understanding of ability/disability and greater inclusion of ASD individuals in society. It additionally provides for the discovery of unanticipated avenues and future research into the causes, consequences and treatment of ASD. Finally, the project also involves the training of graduate student sociologists as Science and Technology Scholars concerned with ASD.

Funder

Funder

National Science Foundation

Fiscal Year Funding

Fiscal Year Funding

0

Current Award Period

Current Award Period

2013-2017

Strategic Plan Question

Strategic Plan Question

Question 1: When Should I Be Concerned?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 1SC. Conduct at least three studies to identify reasons for the health disparities in accessing early screening and diagnosis services, including identification of barriers to implementation of and access to screening, diagnosis, referral, and early intervention services among diverse populations, as defined by socioeconomic status, race, ethnicity, and gender of the child, by 2012. IACC Recommended Budget: $2,000,000 over 2 years.

Project Link

Project Link

 A Sociology of Testing, Diagnosis and Autism Spectrum Disorder (External web link)

Institution

Institution

University of Wisconsin

State/Country

State/Country

Wisconsin

Project Number

Project Number

1257065

Federal or Private?

Federal or Private?

Federal

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

 A Sociology of Testing, Diagnosis and Autism Spectrum Disorder | 476869 | 2013 | 1257065
 A Sociology of Testing, Diagnosis and Autism Spectrum Disorder | 0 | 2014 | 1257065

 
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