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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)

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Project Element Element Description

Project Title

Project Title

Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR

Principal Investigator

Principal Investigator

Lajonchere, Clara

Description

Description

This project will enhance the infrastructure of the Autism Genetic Resource Exchange (AGRE) so that AGRE can serve as a federation site for the National Database for Autism Research (NDAR). AGRE, a program of Autism Speaks, has amassed a robust clinical dataset that includes detailed medical, developmental, morphological, demographic, and behavioral information making it one of the largest systematic repositories of multidisciplinary data for over 4000 ASD individuals and family members. The addition of the comprehensive phenotype and genetic datasets from AGRE will enhance, in both quantity and scope, the knowledge base available to NDAR users, allowing them to advance their analysis and investigation of the underlying causes of autism.

Funder

Funder

National Institutes of Health

Fiscal Year Funding

Fiscal Year Funding

490996

Current Award Period

Current Award Period

na

Strategic Plan Question

Strategic Plan Question

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7H. Create mechanisms to specifically support the contribution of data from 90 percent of newly initiated projects to the National Database for Autism Research (NDAR) and link NDAR with other existing data resources by 2012. IACC Recommended Budget: $6,800,000 over 2 years.

Project Link

Project Link

Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR (External web link)

Institution

Institution

Autism Speaks (AS)

State/Country

State/Country

New York

Project Number

Project Number

1RC1MH089707-01

Federal or Private?

Federal or Private?

Federal

Received ARRA Funding?

Received ARRA Funding?

Yes

History/Related Projects

History/Related Projects

Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR | 469084 | 2010 | 5RC1MH089707-02
Linking data sources from the Autism Genetic Resource Exchange (AGRE) with NDAR (supplement) | 141029 | 2010 | 3RC1MH089707-01S1

 
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