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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Building strong sibling relationships: Effects of support group on siblings and children with autism

Principal Investigator

Principal Investigator

Jones, Emily

Description

Description

Autism affects the entire family and, in turn, the family system affects outcomes for individuals with autism. Typically developing siblings are part of that family system. The sibling relationship can be strained when one sibling has autism. Siblings of children with autism present with their own adjustment and skill needs. Improving sibling adjustment and the sibling relationship may result in increases in learning opportunities for children with ASD and siblings who play a more significant role in caregiving and advocacy across the lifespan, all of which may improve quality of life for the entire family. Building on more than 3 years of research developing the Support and Skills Program (SSP) for siblings of children with autism, we will compare the effects of a sibling support group to an attention only control group and examine a booster program to facilitate maintenance of changes in sibling adjustment and the sibling relationship. At the SSP, children with autism receive one to one instruction while siblings participate in a support group and then all children engage in supported recreation activities. Siblings are a largely underserved group or a group served without empirical evidence for the intervention services provided. Siblings can be valuable and effective change agents in the lives of individuals with autism. This research focuses on improving the sibling relationship to achieve these critical outcomes.

Funder

Funder

Organization for Autism Research

Fiscal Year Funding

Fiscal Year Funding

30000

Current Award Period

Current Award Period

2014-2014

Strategic Plan Question

Strategic Plan Question

Question 5: Where Can I Turn For Services?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 5SA. Support two studies that assess how variations and access to services affect family functioning in diverse populations, including underserved populations, by 2012. IACC Recommended Budget: $1,000,000 over 3 years.

Project Link

Project Link

Building strong sibling relationships: Effects of support group on siblings and children with autism (External web link)

Institution

Institution

CUNY - Queens College

State/Country

State/Country

New York

Project Number

Project Number

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

N/A

 
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