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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Psychiatric Crisis among Youth and Transition-age Adults with Autism Spectrum Disorder

Principal Investigator

Principal Investigator

Vasa, Roma

Description

Description

Psychiatric crises are one of the most serious and potentially life-threatening conditions in children, adolescents, and adults with autism spectrum disorder (ASD). Beyond the obvious threat of injury, these crises can result in devastating outcomes such as loss of school/work/home placement as well as caregiver isolation, exhaustion, and financial strain. While knowledge of this problem is gaining awareness, little research is being devoted to understanding the prevalence and factors associated with psychiatric crises or how parents and providers manage these events. We suspect that current crisis response interventions (e.g., police, emergency room) may be traumatic rather than helpful. The goals of this study are to: a) determine the prevalence and correlates (demographic, clinical, and psychosocial) of psychiatric crises in individuals (3-25 years) with ASD; b) understand how parents/caregivers and providers manage these events; and c) develop a measure of psychiatric crisis that can be used for in research and clinical settings. This study will survey two large well-established samples, parents of an individual (child, adolescent, or young adult) with ASD and child psychiatrists. It is expected that over 15% of parents will report a psychiatric crisis involving their youth with ASD within the last 3 months, and that behaviors such as aggression and self-injury will be the leading cause of crises. Based on prior data, variables associated with psychiatric crises will include limited access to care, lower family quality of life, increased property destruction (in the home) and caregiver financial strain. Most caregivers will prefer not to use available crisis response plans but rather manage the crisis at home despite its potentially dangerous consequences. Most community psychiatrists will report lack of training and resources to manage psychiatric crises in individuals with ASD. These data will help develop early screening tools to prevent crises in high-risk individuals, as well as customized response interventions to manage individuals with ASD who are actively in crises. On a larger scale, the findings will be influential in promoting policy and health care changes that will enhance the quality of, and access to, medical (and psychiatric) care for individuals with ASD and improve the health and outcomes of adults with ASD from a lifetime perspective. - See more at: http://science.grants.autismspeaks.org/search/grants/psychiatric-crisis-among-youth-and-transition-age-adults-autism-spectrum-disorder#sthash.28dragqb.dpuf

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

30000

Current Award Period

Current Award Period

2014-2016

Strategic Plan Question

Strategic Plan Question

Question 4: Which Treatments And Interventions Will Help?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 4SH. Support at least two studies that focus on research on health promotion and prevention of secondary conditions in people with ASD by 2012. Secondary conditions of interest include weight issues and obesity, injury, and co-occurring psychiatric and medical conditions. IACC Recommended Budget: $5,000,000 over 3 years.

Project Link

Project Link

Psychiatric Crisis among Youth and Transition-age Adults with Autism Spectrum Disorder (External web link)

Institution

Institution

HUGO W. MOSER RESEARCH INSTITUTE KENNEDY KRIEGER

State/Country

State/Country

Maryland

Project Number

Project Number

8790

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Psychiatric Crisis among Youth and Transition-age Adults with Autism Spectrum Disorder | 37460 | 2015 | 8790

 
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