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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

A Centralized Standard Database for the Baby Siblings Research Consortium

Principal Investigator

Principal Investigator

Young, Gregory

Description

Description

The primary aim of this study is to maintain and expand upon the BSRC database as a repository of infant sibling phenotypic data from multiple research sites from around the world. The database currently contains longitudinal data from 2,753 high-risk infant siblings and 1,575 low-risk comparison infants, with 17,303 separate age points represented, each comprised of multiple standardized assessment measures of autism symptoms and cognitive and behavioral functioning. The database is designed to facilitate collaborative projects across multiple sites conducting infant sibling research and has already provided data management and analytic support for six collaborative projects in various stages of completion. The database has also been positioned to provide behavioral phenotypic data management for a separate biorepository project, funded jointly by Autism Speaks and the Simons Foundation. This study will continue the past success of the BSRC database by maintaining the current data, updating the database with new research data, and continuing to provide data and analytic support to all current and future collaborative projects. A number of specific extensions and expansions of the current database include monthly on-line data reports, detailed accounting of data availability for all data fields in the database, and standardized data cleaning subroutines and integrity analyses. [BSRC]

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

126394

Current Award Period

Current Award Period

2013-2014

Strategic Plan Question

Strategic Plan Question

Question 1: When Should I Be Concerned?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 1LA. Identify behavioral and biological markers that separately, or in combination, accurately identify, before age 2, one or more subtypes of children at risk for developing ASD, and evaluate whether these risk markers or profiles can improve early identification through heightened developmental monitoring and screening by 2014. IACC Recommended Budget: $33,300,000 over 5 years.

Project Link

Project Link

A Centralized Standard Database for the Baby Siblings Research Consortium (External web link)

Institution

Institution

University of California, Davis

State/Country

State/Country

California

Project Number

Project Number

8431

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

A Centralized Standard Database for the Baby Siblings Research Consortium | 117851 | 2013 | 8431
A Centralized Standard Database for the Baby Siblings Research Consortium | 25000 | 2015 | 9494
A Centralized Standard Database for the Baby Siblings Research Consortium | 62250 | 2014 | 9494
A centralized standard database for the Baby Siblings Research Consortium | 63200 | 2010 | 7470
A centralized standard database for the Baby Siblings Research Consortium | 81803 | 2011 | 7470
A centralized standard database for the Baby Siblings Research Consortium | 0 | 2012 | 7470

 
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