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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment

Principal Investigator

Principal Investigator

Carpenter, Laura

Description

Description

The Centers for Disease Control and Prevention-sponsored Autism and Developmental Disabilities Monitoring (ADDM) Network has monitored the prevalence of Autism Spectrum Disorders (ASD) among 8-year-olds in the US since 2000 using a rigorous record review methodology. This methodology has provided valuable insight into the epidemiology of the disorder, but recent studies that have employed screening and direct clinical assessment in the general population have reported significantly higher prevalence estimates than ADDM. The objectives of this study are to enhance our understanding of ADDM prevalence estimates, identify barriers to identification, and characterize the needs of children across the entire spectrum. This will be accomplished by conducting a screening and direct assessment study in the general population in an area already undergoing monitoring by ADDM. Specifically, all 8-year-olds in a three county region of South Carolina (n=8,000) will be screened for ASD using the Social Communication Questionnaire. All children identified as being at risk for an ASD, and 30% of those found to be at lower risk, will be invited to participate in an in-person diagnostic assessment (n=500). Case status will be assigned based on DSM-IV criteria and by scores on the Autism Diagnostic Observation Schedule and the Social Responsiveness Scale. Information regarding adaptive behaviors, level of impairment, cognitive skills, behavioral symptoms, and prior diagnoses will also be collected. Evidenced based strategies will be implemented to maximize participation in the screening and diagnostic phases of the study to improve accuracy of findings. ASD prevalence estimates will be calculated using the number of children aged 8 years residing in the study area as the denominator, and the number of children identified as cases as the numerator, with adjustments made for missing data from nonparticipants. Prevalence estimates will be provided using both traditional ADDM and ADDM Screening/Assessment methods. Factors contributing to differences in ASD prevalence estimates by methodology (e.g., sex, race/ethnicity, socioeconomic status, previous diagnoses, behaviors, degree of impairment, co-morbidities) will be examined. Because prevalence estimates are used to guide high-impact decision-making regarding critical issues such as allocation of funds for services and research, accurate reporting of ASD prevalence is important to researchers, health care providers, policy makers, and families.

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

0

Current Award Period

Current Award Period

2011-2014

Strategic Plan Question

Strategic Plan Question

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 7I. Supplement existing ADDM Network sites to use population-based surveillance data to conduct at least 5 hypothesis-driven analyses evaluating factors that may contribute to changes in ASD prevalence by 2012. IACC Recommended Budget: $660,000 over 2 years.

Project Link

Project Link

Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment (External web link)

Institution

Institution

UNIVERSITY OF SOUTH CAROLINA

State/Country

State/Country

South Carolina

Project Number

Project Number

7793

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment | 0 | 2011 | 7793
Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment | 275000 | 2012 | 7793
Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment | 262621 | 2013 | 7793
Autism and Developmental Disabilities Monitoring Network augmentation with screening and assessment | 275000 | 2014 | 7793

 
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