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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Quality of life for children with autism spectrum disorders and their parents

Principal Investigator

Principal Investigator

Kuhlthau, Karen

Description

Description

Health-related quality of life (HRQoL) is a multidimensional measure of the effects of illness on a patient, as perceived by the individual or proxy-reporter. This study will assess the HRQoL of children with autism spectrum disorder (ASD) and that of their parents. Specifically, this study will assess the relationship of children's HRQoL with measures of clinical severity, sleep disorders, behavior, and executive functioning. This study will also examine the relationship between parental quality of life scores with the child's HRQoL and the child's clinical characteristics. A final goal will be to develop an autism-specific HRQoL measure for children. This study will use the Autism Treatment Network (ATN), a multi-site collaborative program focused on establishing standards of medical care for ASD children. The ATN enrolls large numbers of children nationwide and provides a data registry comprised of standardized measures.

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

150000

Current Award Period

Current Award Period

na

Strategic Plan Question

Strategic Plan Question

Question 5: Where Can I Turn For Services?

Strategic Plan Objective

Strategic Plan Objective

5O. Not specific to Question 5 objectives

Project Link

Project Link

Quality of life for children with autism spectrum disorders and their parents (External web link)

Institution

Institution

Massachusetts General Hospital

State/Country

State/Country

Massachusetts

Project Number

Project Number

1954

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Quality of life for children with autism spectrum disorders and their parents | 127500 | 2010 | 1954
Quality of life for children with autism spectrum disorders and their parents | 150000 | 2008 | 1954

 
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