Health-related quality of life (HRQoL) is a multidimensional measure of the effects of illness on a patient, as perceived by the individual or proxy-reporter. This study will assess the HRQoL of children with autism spectrum disorder (ASD) and that of their parents. Specifically, this study will assess the relationship of children's HRQoL with measures of clinical severity, sleep disorders, behavior, and executive functioning. This study will also examine the relationship between parental quality of life scores with the child's HRQoL and the child's clinical characteristics. A final goal will be to develop an autism-specific HRQoL measure for children.
This study will use the Autism Treatment Network (ATN), a multi-site collaborative program focused on establishing standards of medical care for ASD children. The ATN enrolls large numbers of children nationwide and provides a data registry comprised of standardized measures.