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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Measuring quality adjusted life years in children with autism spectrum disorders

Principal Investigator

Principal Investigator

Tilford, John

Description

Description

Autism spectrum disorders (ASDs) are characterized by impairments in social skills, communication, and cognitive and behavioral functioning. Successful interventions for children with ASDs thus have the potential to not only affect outcomes of the child but may include substantial health benefits for the family. Guidelines for evaluating the cost-effectiveness of services recommend using the cost per quality adjusted life year (QALY) gained. To date, no studies have attempted to evaluate whether instruments to measure QALYS in children with ASDs are sensitive to the condition. In addition, research is needed to account for family effects in cost- effectiveness analysis. This research will address these issues by evaluating the sensitivity and psychometric properties of alternative generic instruments for measuring QALYS in children with ASDs and by determining whether caregiver QALYS should be incorporated into the cost-effectiveness model. Findings from the study will improve methods to accurately assess the cost-effectiveness of interventions to treat children with ASDs and assist in the translation of experimental findings into evidence-based policy for decision making.

Funder

Funder

National Institutes of Health

Fiscal Year Funding

Fiscal Year Funding

441724

Current Award Period

Current Award Period

na

Strategic Plan Question

Strategic Plan Question

Question 1: When Should I Be Concerned?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 1LC. Identify and develop measures to assess at least three "continuous dimensions" (i.e., social reciprocity, communication disorders, and repetitive/restrictive behaviors) of ASD symptoms and severity that can be used by practitioners and/or families to assess response to intervention for people with ASD across the lifespan by 2016. IACC Recommended Budget: $18,500,000 over 5 years.

Project Link

Project Link

Measuring quality adjusted life years in children with autism spectrum disorders (External web link)

Institution

Institution

Arkansas Children's Hospital Research Institute

State/Country

State/Country

Arkansas

Project Number

Project Number

1R01MH089466-01

Federal or Private?

Federal or Private?

Federal

Received ARRA Funding?

Received ARRA Funding?

Yes

History/Related Projects

History/Related Projects

Measuring quality adjusted life years in children with autism spectrum disorders | 528985 | 2010 | 7R01MH089466-02
Measuring quality adjusted life years in children with autism spectrum disorders (supplement) | 4852 | 2010 | 3R01MH089466-01S1

 
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