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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Identifying disparities in access to treatment for young children with autism

Principal Investigator

Principal Investigator

Bilaver, Lucy

Description

Description

The purpose of the proposed study is to identify disparities in access to treatment for young children with autism spectrum disorders (ASD).  In particular, this project will identify treatment that occurs both inside and outside the school system.  This study will focus on disparities across multiple dimensions including race, region, socioeconomic status, and type of health insurance.  While previous research has documented disparities in the age at diagnosis, an understanding of how this phenomenon translates to service use for children in early elementary school is lacking.  The study design is observational and longitudinal relying on unique, nationally representative data generated from the Pre-Elementary Education Longitudinal Study (PEELS).  The PEELS followed a nationally representative sample of over 3,000 preschool aged (age 3-5) children receiving special education services through 5 waves of data collection beginning in 2003-2004.  The unweighted study sample includes approximately 450 children ever identified as having autism during the first 4 waves of data collection.  Generalized estimating equations will be used to identify disparities in receipt of treatment services including speech, occupational, and physical therapies, behavior therapy or behavior management program, play therapy or group, and psychological or mental health services.  The results of this analysis can be used to identify targets of intervention to reduce service disparities.

Funder

Funder

Organization for Autism Research

Fiscal Year Funding

Fiscal Year Funding

20000

Current Award Period

Current Award Period

2012-2013

Strategic Plan Question

Strategic Plan Question

Question 5: Where Can I Turn For Services?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 5SA. Support two studies that assess how variations and access to services affect family functioning in diverse populations, including underserved populations, by 2012. IACC Recommended Budget: $1,000,000 over 3 years.

Project Link

Project Link

Identifying disparities in access to treatment for young children with autism (External web link)

Institution

Institution

University of Chicago

State/Country

State/Country

Illinois

Project Number

Project Number

N/A

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Identifying disparities in access to treatment for young children with autism | 0 | 2014 |
Identifying disparities in access to treatment for young children with autism | 9990 | 2013 |

 
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