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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

20-year outcome of autism

Principal Investigator

Principal Investigator

McMahon, William

Description

Description

Previous studies have yielded some helpful findings about the course of autism into adulthood; yet, longitudinal research using a large population-based sample is needed to better understand this disorder. Proposed is a study of individuals originally identified in the 1980's, now in middle-adulthood. The sample comprises individuals with DSM-III autism and others identified through the 1980's survey that did not reach the DSM-III threshold but would have met DSM-IV criteria for an autism spectrum disorder in childhood. The primary aim is to understand all aspects of current clinical presentations including symptoms of autism, associated features, cognitive status, and comorbid conditions. A second aim focuses on service needs by evaluating current functioning and service use in order to describe service needs and gaps. The third aim is an analysis of childhood variables extracted from the 1980s records and current adult variables. Initial extraction from state vital records databases indicates that data are available on major life events (e.g., mortality, marriage) on 77% of the sample. Based on a pilot study, direct assessment data is anticipated for 75% of living participants (n =203). Analyses of current and historical data may suggest developmental subtypes of ASD with different etiologies. Subtypes may be amenable to certain interventions that could dramatically improve quality of life. In addition to disseminating results about adult functioning and developmental trajectories, this project develop a unique resource for future studies of autism in adulthood that use genetic, imaging, and intervention techniques. The study should lead to additional follow-up in later adulthood.

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

149964

Current Award Period

Current Award Period

2010-2013

Strategic Plan Question

Strategic Plan Question

Question 2: How Can I Understand What Is Happening?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 2LA. Complete a large-scale, multi-disciplinary, collaborative project that longitudinally and comprehensively examines how the biological, clinical, and developmental profiles of individuals, with a special emphasis on females, youths, and adults with ASD, change over time as compared to typically developing people by 2020. IACC Recommended Budget: $126,200,000 over 12 years.

Project Link

Project Link

20-year outcome of autism (External web link)

Institution

Institution

University of Utah

State/Country

State/Country

Utah

Project Number

Project Number

5955

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

20-year outcome of autism | 150000 | 2010 | 5955
20-year outcome of autism | 150000 | 2011 | 5955
20-year outcome of autism | 0 | 2013 | 5955

 
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