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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

The effects of State and Federal insurance policies on quality of care for autism

Principal Investigator

Principal Investigator

Leslie, Douglas

Description

Description

The challenges in identifying, accessing, navigating and paying for autism spectrum disorder (ASD) services available in a given community, given the complexity of a child's needs, available services, and financing arrangements, can place a substantial burden on parents and caregivers of children with ASD. Although previous studies have examined satisfaction with care and the impact of having a child with ASD on parental income and employment, little is known about the effects of state policies regarding coverage and financing of services for children with ASD on these outcomes, or whether these effects differ by race/ethnicity. This study would explore these effects using data from multiple waves of two national surveys of children's health: the National Survey of Children with Special Health Care Needs and the National Survey of Children's Health. We will examine the effects of these policies on access to care, satisfaction and family burden among children with ASD and their families in both publicly and privately insured populations. We will also explore whether characteristics of the waivers or of the mandates are associated with changes in access to care, family burden and satisfaction, and whether these effects differ by race/ethnicity. In addition to informing future Medicaid waivers and insurance coverage mandates, the results of the study will be instrumental in implementing the Federal Mental Health Parity and Addiction Equity Act and health care reform.

Funder

Funder

National Institutes of Health

Fiscal Year Funding

Fiscal Year Funding

450534

Current Award Period

Current Award Period

2012-2015

Strategic Plan Question

Strategic Plan Question

Question 5: Where Can I Turn For Services?

Strategic Plan Objective

Strategic Plan Objective

Green dot: Objective has greater than or equal to the recommended funding. 5SA. Support two studies that assess how variations and access to services affect family functioning in diverse populations, including underserved populations, by 2012. IACC Recommended Budget: $1,000,000 over 3 years.

Project Link

Project Link

The effects of State and Federal insurance policies on quality of care for autism (External web link)

Institution

Institution

Pennsylvania State University

State/Country

State/Country

Pennsylvania

Project Number

Project Number

1R01MH097298-01A1

Federal or Private?

Federal or Private?

Federal

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

N/A

 
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