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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

A Centralized Standard Database for the Baby Siblings Research Consortium

Principal Investigator

Principal Investigator

Young, Gregory

Description

Description

The proposed project is targeted at managing the Baby Sibs Research Consortium (BSRC) database. The BSRC database currently has well over 4,000 high-risk and low-risk infant siblings, with more than 18,000 multiple, prospective data and has roughly 345 children with a diagnostic outcome of ASD from over 31 separate sites. The BSRC database helps to ensure that productive collaborations among BSRC members can continue, and allow research in the early identification and developmental trajectory of autism to advance in ways that other research fields have begun to do with similar collaborative databases (e.g., BIRN, NAPLS).

Funder

Funder

Autism Speaks

Fiscal Year Funding

Fiscal Year Funding

25000

Current Award Period

Current Award Period

2014-2016

Strategic Plan Question

Strategic Plan Question

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7O. Create an information resource for ASD researchers (e.g., PhenX Project) to share information to facilitate data sharing and standardization of methods across projects by 2013. o This includes common protocols, instruments, designs, and other procedural documents and should include updates on new technology and links to information on how to acquire and utilize technology in development. o This can serve as a bidirectional information reference, with autism research driving the development of new resources and technologies, including new model systems, screening tools, and analytic techniques. IACC Recommended Budget: $2,000,000 over 2 years.

Project Link

Project Link

A Centralized Standard Database for the Baby Siblings Research Consortium (External web link)

Institution

Institution

University of California, Davis

State/Country

State/Country

California

Project Number

Project Number

9494

Federal or Private?

Federal or Private?

Private

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

A Centralized Standard Database for the Baby Siblings Research Consortium | 117851 | 2013 | 8431
A Centralized Standard Database for the Baby Siblings Research Consortium | 126394 | 2014 | 8431
A Centralized Standard Database for the Baby Siblings Research Consortium | 62250 | 2014 | 9494
A centralized standard database for the Baby Siblings Research Consortium | 63200 | 2010 | 7470
A centralized standard database for the Baby Siblings Research Consortium | 81803 | 2011 | 7470
A centralized standard database for the Baby Siblings Research Consortium | 0 | 2012 | 7470

 
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