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Interagency Autism Coordinating Committee (IACC)
Autism Research Database
Office of Autism Research Coordination (OARC)
 
Project Element Element Description

Project Title

Project Title

Impacts and State utilization of HCBS waiver services for families and children with autism

Principal Investigator

Principal Investigator

Eskow, Karen

Description

Description

This project explores impacts of implementation of Medicaid Home and Community Based (HCBS) Waiver initiatives in support of children and families who experience autism. In a two-pronged approach, the project studies state policy makers and factors contributing to or impeding implementation of HCBS autism waivers at the state level, and studies families and youth in a state with an autism waiver in place -- Maryland -- to learn more about service needs, impacts of the waiver on children/youth and families, and service configurations that may make the most difference to children with autism and their families at younger ages as compared to transition ages. In Study One, Phase 1 involves in-depth qualitative interviews with policy makers in four states concerning perspectives about facilitators and barriers to implementing HCBS waivers in general and autism waivers in particular. These results are used to develop a national survey to be distributed in Phase 2 to all 50 states. Study Two involves in-depth qualitative interviews with 48 Waiver and Registry families to probe their perspectives about their child and family needs, impacts of the child's disability, concerns about approaching transitions, and impacts of the services they are receiving. The results of this study inform Phase 2 of Study Two (as well as any additional issues identified in the national survey of states from Study One), which is a statewide survey distributed to families receiving Waiver services and on the Registry list.Study tests the hypothesis that child/family demographic characteristics (ethnicity, race, income, education) will not significantly change the outcomes for families and children/youth who are on the waiver program.

Funder

Funder

Administration for Community Living

Fiscal Year Funding

Fiscal Year Funding

0

Current Award Period

Current Award Period

2012-2015

Strategic Plan Question

Strategic Plan Question

Question 5: Where Can I Turn For Services?

Strategic Plan Objective

Strategic Plan Objective

Yellow dot: Objective has some degree of funding, but less than the recommended amount. 5SA. Support two studies that assess how variations and access to services affect family functioning in diverse populations, including underserved populations, by 2012. IACC Recommended Budget: $1,000,000 over 3 years.

Project Link

Project Link

Impacts and State utilization of HCBS waiver services for families and children with autism (External web link)

Institution

Institution

Towson University

State/Country

State/Country

Maryland

Project Number

Project Number

90IF0023

Federal or Private?

Federal or Private?

Federal

Received ARRA Funding?

Received ARRA Funding?

No

History/Related Projects

History/Related Projects

Impacts and State utilization of HCBS waiver services for families and children with autism | 200000 | 2012 | H133G120030
Impacts and State utilization of HCBS waiver services for families and children with autism | 200000 | 2014 | 90IF0023
Impacts and State utilization of HCBS waiver services for families and children with autism | 199999 | 2013 | H133G120030

 
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