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Thursday, April 17, 2014

IACC Releases its 2013 Summary of Advances in Autism Spectrum Disorder Research During Autism Awareness Month [HTML version], (PDF – 349 KB)
The Interagency Autism Coordinating Committee (IACC) has published its selections for the twenty most significant studies in the field of autism spectrum disorder (ASD) research in 2013. Read more | Summary of Advances

Wednesday, April 2, 2014

IACC Issues Statement Regarding Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder [HTML version], (PDF – 115 KB)
Today, on World Autism Awareness Day 2014, the Interagency Autism Coordinating Committee (IACC) issued a statement regarding the scientific, practice, and policy implications of changes in the diagnostic criteria for Autism Spectrum Disorder (ASD) that were made in the most recent update of the Diagnostic and Statistical Manual of Mental Disorders (DSM). Read more

Secretary-General Ban Ki-moon Message for the World Autism Awareness Day 2014, United Nations Secretary-General
World Autism Awareness Day is about more than generating understanding; it is a call to action. I urge all concerned to take part in fostering progress by supporting education programmes, employment opportunities and other measures that help realize our shared vision of a more inclusive world. Read more

Tuesday, April 1, 2014

Presidential Proclamation -- World Autism Awareness Day, 2014, President of the United States of America
Each year, people across the globe take time to recognize the millions of people living on the autism spectrum, including 1 out of every 68 American children. Americans with autism contribute to all aspects of society and are an essential thread in the diverse tapestry of our Nation. On World Autism Awareness Day, we offer our support and respect to all those on the autism spectrum. Read more

Thursday, March 27, 2014

IACC Chair Blogs About Autism Awareness
In this blog, IACC Chair Dr. Insel discusses what we have learned from the most recent CDC prevalence update and the developmental neurobiology of autism. Read more

Tuesday, April 9, 2013

IACC Releases its 2012 Summary of Advances in Autism Spectrum Disorder Research During National Autism Awareness Month [HTML version], (PDF – 290 KB)
The Interagency Autism Coordinating Committee (IACC) has published its selections for the twenty most significant studies in the field of autism spectrum disorder (ASD) research in 2012. Read more | Summary of Advances

Tuesday, April 2, 2013

Presidential Proclamation on World Autism Awareness Day, President of the United States of America
Today, public health officials estimate that 1 in every 88 children in America is growing up on the autism spectrum. It is a reality that affects millions of families every day, from the classroom to the job market. Read more

HHS Secretary Kathleen Sebelius Statement on National Autism Awareness Month
Every April during National Autism Awareness Month, we recognize the special challenges faced by those living with Autism Spectrum Disorders (ASD) and refocus our efforts on the best ways to support them and their families. Read more

UN Secretary-General's Statement on World Autism Awareness Day, United Nations Secretary-General
World Autism Awareness Day has succeeded in calling greater international attention to autism and other developmental disorders that affect millions of people worldwide. Read more

UN Press Release
A growing number of countries are heralding a new call for involvement in addressing autism and other developmental disorders that affect millions of individuals and their families and societies worldwide as the United Nations and communities around the globe mark World Autism Awareness Day on 2 April. Read more

Monday, March 25, 2013

IACC Recommends Public and Private Insurance Coverage of Early Behavioral Interventions for Children with Autism [HTML version], (PDF – 79 KB)
Today the Interagency Autism Coordinating Committee (IACC) submitted a letter to the Secretary of Health and Human Services, Kathleen Sebelius, recommending public and private insurance coverage of early behavioral interventions for children with autism spectrum disorder (ASD). Read more

Tuesday, February 26, 2013

The Four Kingdoms of Autism, IACC Chairman, Dr. Thomas Insel
This blog, by Dr. Thomas Insel, Chair of the IACC, discusses four distinct perspectives or "kingdoms" that characterize different aspects and needs of the autism community and that present challenges in finding a way to recognize differences while working together toward the common goal of improving the lives of children and adults on the spectrum and their families. Read more

Monday, February 4, 2013

2012 IACC Strategic Plan Update Focuses on Recent Advances and Emerging Opportunities in Autism Research
The Interagency Autism Coordinating Committee (IACC) has released its Strategic Plan for Autism Spectrum Disorder (ASD) Research – 2012 Update.  The 2012 Strategic Plan Update provides an update on recent developments in each of the seven critical research areas outlined in the 2011 IACC Strategic Plan for ASD Research, including screening and diagnosis, the underlying biology of ASD, risk factors, treatments and interventions, services, lifespan issues, and surveillance and infrastructure.  Read more | Strategic Plan Update

Wednesday, December 26, 2012

Autism Progress, IACC Chairman, Dr. Thomas Insel
Every year the Interagency Autism Coordinating Committee (IACC) updates its Strategic Plan for Autism Spectrum Disorder Research, identifying progress and new opportunities across the range of autism spectrum disorder (ASD) research. Each year this task gets more difficult. In 2012, the speed of progress was so rapid that each draft of the Plan was out of date by the time the IACC reviewed it. The sheer volume of research was overwhelming. According to PubMed, there were over 1,000 ASD papers related to genetics or brain imaging since January 2011 – more than three times the number of papers from the same interval a decade ago. Read more

Friday, December 21, 2012

Statement of the Interagency Autism Coordinating Committee (IACC) Related to the Sandy Hook Tragedy [HTML version], (PDF – 109 KB)
The events of December 14 in Newtown, Connecticut shocked and saddened people worldwide. All of the members of the IACC express our deepest sympathy and support for the families and community affected by these terrible killings. Some news reports suggested the gunman had Asperger syndrome, an autism spectrum disorder (ASD). Because this tragic event has shaken so many, the IACC wants to ensure that continued speculation about the gunman's diagnosis does not hurt others in the community. Our committee has collectively prepared this statement to address public concerns and questions about the implied association between autism and extreme violence directed at others. Read more

Monday, May 21, 2012

Time Matters – Why We Care So Much About Data Sharing, IACC Chairman, Dr. Thomas Insel
There are so many reasons not to share scientific data – in industry, among academics, and even for some patients. For pharmaceutical companies, data are usually considered proprietary, with sharing limited by intellectual property rules. Research and development is a competitive process with success defined by being the first to bring a lucrative product to market. In universities, research is no less competitive. Scientific success in universities is built around attaining tenure through individual promotion and publications. Read more

Wednesday, April 4, 2012

The New Genetics of Autism – Why Environment Matters, IACC Chairman, Dr. Thomas Insel
Last week's autism news was about prevalence. The CDC reported a 78 percent increase in autism prevalence since 2002. This week's autism news is about genetics—three papers in Nature describe new genes associated with autism. For many people, these two stories seem contradictory or, at best, unrelated. Increasing prevalence suggests environmental factors like chemicals and microbes changing over the past decade, whereas genes change over generations. Why is anyone looking for genetic causes when there is such a rapid increase in prevalence? Shouldn't every research dollar be invested in finding the environmental culprit rather than searching for rare gene variants? Read more

Monday, April 2, 2012

IACC Releases Its 2011 Summary of Advances in Autism Spectrum Disorder Research
On April 2, in honor of the fifth annual World Autism Awareness Day and HHS Autism Awareness Month the IACC has released its annual list of scientific advances that represent significant progress in the field. Read more | Summary of Advances

Statement by Secretary Sebelius on National Autism Awareness Month
In April, we recognize National Autism Awareness Month and the special challenges faced by those with Autism Spectrum Disorders (ASD). Read more

Secretary-General's Message for 2012, United Nations Secretary-General
Autism is not limited to a single region or a country; it is a worldwide challenge that requires global action. Read more

Thursday, March 29, 2012

HHS Secretary Names New Public Members to Serve on Interagency Autism Coordinating Committee
The Department of Health and Human Services today announced the names of the fifteen individuals invited to participate as public members of the newly reauthorized Interagency Autism Coordinating Committee (IACC). The diverse group invited by HHS Secretary Kathleen Sebelius to join the IACC includes three autism self-advocates, several parents of affected children, a practicing developmental pediatrician, and several researchers, and leaders of autism services and research organizations. Many of the nominated individuals serve dual roles, dedicating their professional careers to autism because of a family member with the disorder. National advocacy organizations represented by the invited individuals include Autism Speaks, Simons Foundation, Autism Science Foundation, the Autistic Self Advocacy Network, SafeMinds, and the Somali American Autism Foundation. Read more

HHS Announces New Members of the Interagency Autism Coordinating Committee
Health and Human Services (HHS) Secretary Kathleen Sebelius announced today that she has invited 15 individuals to serve as public members on the Interagency Autism Coordinating Committee (IACC). Read more

Autism Prevalence: More Affected or More Detected? IACC Chairman, Dr. Thomas Insel
Autism is always surprising. Earlier today, the CDC released new numbers from their ongoing surveillance of autism prevalence, the Autism and Developmental Disability Monitoring (ADDM) Network. What was once considered a rare disorder is now reported as affecting 1 in 88 children, 1 in 54 boys. These new numbers, up 78 percent from 2002 and 23 percent from 2006, raise immediate questions. Are more children affected or more detected? Does the increase reflect a growing problem—an epidemic—or do these new numbers reflect an improvement in our ability to diagnose and serve those affected? Read more

Friday, October 28, 2011

Interagency Autism Coordinating Committee to Continue into 2014; HHS Seeks Nominations for Public Membership
On September 30, 2011, President Obama signed the Combating Autism Reauthorization Act (CARA) into law, ensuring that all vital Federal autism research and services programs would continue without disruption and allowing the Interagency Autism Coordinating Committee (IACC) to carry on its work until 2014. Read more

Monday, July 11, 2011

IACC Chairman Insel Testifies Before House Committee on the Combating Autism Act and the Accomplishments of the IACC
Testifying before the U.S. House of Representatives Energy and Commerce Subcommittee on Health on July 11, Dr. Thomas Insel spoke about the Combating Autism Act of 2006 and the successful federal coordination and public-private partnership efforts that have resulted from the Interagency Autism Coordinating Committee (IACC) that was created as part of the legislation. Read more

Monday, May 23, 2011

2011 International Meeting For Autism Research Features Opening Address from IACC Chairman Insel and Contributions from IACC Members
The tenth annual International Meeting for Autism Research (IMFAR) held May 12 – 14 in San Diego, California, attracted nearly 2,000 researchers, advocates, autism specialists, and students from across the globe. Read more

Monday, April 28, 2011

IACC Members Participate in White House Autism Awareness Month Conference
The White House held a conference to celebrate Autism Awareness month on April 25, 2011, gathering research experts, health professionals, advocates, and families to share their ideas on speeding progress in the field and meeting the complex needs of people on the spectrum and their families. Read more

Friday, April 1, 2011

IACC Chairman, Dr. Thomas Insel, Highlights Recent Progress in Honor of National Autism Awareness Month
April is Autism Awareness Month. Each year this is a good time to take stock of progress. The Interagency Autism Coordinating Committee (IACC) published its annual Summary of Advances in Autism Spectrum Disorder (ASD) Research today and recently posted the annual update of its Strategic Plan for ASD Research. Read more

Friday, April 1, 2011

On World Autism Awareness Day, IACC Releases 2010 Summary of Advances in ASD Research
In celebration of World Autism Awareness Day, the IACC has released its list of the top twenty scientific advances in autism spectrum disorder (ASD) research for 2010. Read more | Summary of Advances

Monday, February 28, 2011

2011 IACC Strategic Plan Includes New Focus on Interventions for Nonverbal People with ASD, Health Promotion Efforts, and Safety
The Interagency Autism Coordinating Committee (IACC) has released its 2011 Strategic Plan for Autism Spectrum Disorder (ASD) Research, which is intended to provide a blueprint for future ASD research efforts. Read more

Monday, February 28, 2011

Mother's Testimony to the IACC Sparks Rapid Response to Investigate Autism Rates in Somali Families Living in Minnesota
Ms. Idil Abdull spoke with conviction as she addressed the Interagency Autism Coordinating Committee (IACC) in October 2010, "If you want to know the answer to autism, come and study us. This is your gold mine," said the Somali mother of a child with autism and founder of the Somali American Autism Foundation. Read more | Related Articles

Friday, June 18, 2010

IACC Issued a New Request for Information (RFI) to Inform the Updating of the IACC Strategic Plan
Read more | View the responses

Friday, April 30, 2010

HHS Secretary Sebelius Appoints Five New Members to the Interagency Autism Coordinating Committee (IACC)
The Interagency Autism Coordinating Committee (IACC) is announcing the addition of five new public members appointed by the Secretary of Health and Human Services, Kathleen Sebelius. Read more

Secretary Sebelius Announces New Members of the Interagency Autism Coordinating Committee
Health and Human Services Secretary Kathleen Sebelius announced today the appointment of five new members to the Interagency Autism Coordinating Committee (IACC), a federal advisory committee created in an effort to accelerate progress in autism spectrum disorder (ASD) research and services. Read more

Friday, April 2, 2010

IACC Releases Its Annual Summary of Advances in ASD Research on World Autism Awareness Day
In conjunction with the United Nations (UN) designated "World Autism Awareness Day" on April 2, the IACC announced its selection of twenty scientific advances in biomedical and services research for 2009. Read more | Summary of Advances

Thursday, April 1, 2010

Statement By Secretary Sebelius on National Autism Awareness Month
During National Autism Awareness Month, we reflect on an urgent public health challenge and rededicate ourselves to addressing the complex needs of people with autism and their families. Read more

Wednesday, February 3, 2010

New 2010 IACC Strategic Plan Emphasizes Research Infrastructure, Non-Verbal People with ASD and the Full Spectrum from Young Children to Adults
The first update to the Interagency Autism Coordinating Committee (IACC) strategic plan for autism research received unanimous approval from the 19-member advisory group that drafted the recommendations. The IACC, created under the Combating Autism Act (CAA) of 2006, finalized the 2010 Plan at their meeting on January 19, 2010. Read more

Thursday, March 5, 2009

Advisory Panel Releases First Federal Strategic Plan for Autism Research
The Interagency Autism Coordinating Committee (IACC), a federal government advisory panel, has released its first blueprint for autism research. The IACC Strategic Plan for Autism Spectrum Disorder Research will advise federal agencies and Congress on needs and opportunities for research investigating autism, a complex developmental disorder that affects 1 in 150 children. Read more

Tuesday, November 27, 2007

HHS Secretary Leavitt Announces Members of the New Interagency Autism Coordinating Committee
HHS Secretary Mike Leavitt announced today the members appointed to the Department of Health and Human Services' new Interagency Autism Coordinating Committee. This committee coordinates efforts within the department to combat autism spectrum disorder through research, screening, intervention, and education. Read more



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