Office of Autism Research Coordination Logo

Please enjoy OARC’s quarterly newsletter, which includes information on recent events, news, publications, and community participation opportunities.

OARC Interview

  Sam Crane being interviewed  
January 15, 2019
Samantha Crane discusses her background, the mission of the Autistic Self Advocacy Network, and how the IACC can help the autism community.
Meetings & Events
  IACC Logo  
January 16, 2019
This month's meeting will include a Housing Policy Update from the Centers for Medicare and Medicaid Services, the TRICARE Autism Care Demonstration, and a panel presentation on wandering and criminal justice issues for people with disabilities.
  Stuart Spielman at October IACC Meeting  
October 17, 2018
The October meeting included presentations on Unintentional Injury in Autistic Individuals and Financial Planning/ABLE Accounts for People with Disabilities, as well as an update of the IACC Strategic Plan.
News & Blogs
  NCSA Logo  
January 10, 2019
A new organization, the National Council on Severe Autism (NCSA), launched in January 2019 to address many of the challenges in services, housing, and policy faced by families, caregivers, and individuals with severe forms of autism and related disorders. IACC member Ms. Alison Singer is a member of the Board of Directors.
  Suicidology Logo  
October 23, 2018
The American Association of Suicidology (AAS) announced the release of a resource to support autistic individuals during a crisis, specifically when interacting with crisis intervention services.
  Diverse group of kids playing together  
December 11, 2018
The CDC launched a new phase of funding for the Autism and Developmental Disabilities Monitoring (ADDM) Network. Over the next four years, CDC will invest more than $16 million to enhance tracking at nine sites previously included in the ADDM Network, and to launch one new site. One network site will also conduct a follow-up of 16-year-olds who were included in the ADDM Network in the years 2010 and 2012, when they were 8 years old.
  IACC ASD Research Portfolio Analysis Report cover for 2016  
Fiscal Year 2016
The 2016 IACC ASD Research Portfolio Analysis Report is the first analysis of the 2016-2017 IACC Strategic Plan’s 23 new objectives. Data includes information on trends in ASD research funding based on federal agencies and private organizations in the United States. The Autism Research Database has been updated with the 2016 data.
  HRSA Logo  
November 26, 2018
A new HRSA-led study using national survey data estimates that 1.5 million U.S. children, or 1 in 40, have autism. This estimate is based on data collected from more than 50,000 children in the HRSA National Survey of Children's Health. The full report is published in Pediatrics.
Opportunities for Community Participation
  Group of people, of different ages, standing together  
The NIH All of Us Research Program is now open for enrollment. The program seeks to gather data from one million or more people to accelerate research and improve health. Individuals with disabilities are welcome to participate.
  NIMH logo  
There are multiple opportunities available to participate in studies at NIMH, including studies related to autism and other disabilities.