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Autism Summit Conference: Developing a National Agenda

| Summary |

Master of Ceremonies: Tom Insel, M.D., NIMH

Day 1: November 19, 2009
Time Event
9:00 a.m. Welcome
Tommy Thompson, Secretary of Health and Human Services
9:15 Remarks
Dr. Rod Paige, Secretary of Education
9:25 Remarks
Noel Dempsey, T.D., Minister for Education and Science, Ireland
9:30 Presentation: The Face of Autism
Jon Shestack, Cure Autism Now
10:00 Remarks
Elias Zerhouni, M.D., NIH
10:15 BREAK (Exhibit Hall, Room 150 AB)
Sponsored by the Autism Coalition for Research & Education
10:35 Remarks
Congressman Henry Waxman, U.S. House of Representatives
10:50 Remarks
Congressman Dan Burton, U.S. House of Representatives
11:05 Remarks
Congressman Dave Weldon, U.S. House of Representatives
11:20 PUBLIC/PRIVATE PARTNERSHIPS
Introductions by: Tom Insel, M.D., Story Landis, Ph.D., and Duane Alexander, M.D.
 
11:20 CAN Initiatives for Data Sharing
Jon Shestack, Cure Autism Now
Steve Moldin, Ph.D., NIMH
11:30 ASA/CDC Partnership: Autism Awareness Campaign
José Cordero, M.D., MPH, CDC
Robert Beck, Autism Society of America
11:40 NICHD/NAAR High Risk/Baby Sibling Autism Research Collaboration
Duane Alexander, M.D., NICHD
11:50 NAAR Autism Genome Project
Prisca Chen Marvin, National Alliance for Autism Research
Tom Insel, M.D., NIMH
Story Landis, Ph.D., NINDS
12:00 p.m. LUNCH – Sponsored by the National Alliance for Autism Research
(Room 146)

Scheduled guest speakers: Senator Hillary Rodham Clinton, NIMH Director Thomas Insel and NINDS Director Story Landis. As various members of Congress have also been invited to speak, the agenda is subject to change.
1:00 THEME 1: SERVICES FOR INDIVIDUALS WITH AUTISM ACROSS THE LIFESPAN
 
1:00 p.m. Welcoming Remarks (Room 151 AB)
Robert H. Pasternack, Ph.D., Assistant Secretary, Office of Special
Education and Rehabilitative Services, U.S. Department of Education
1:30 Concurrent Sessions
(please see room assignments next to each session name)

Session A: Early Childhood/Birth to Five (Room 152 A)
Moderator: Merle McPherson, M.D., Health Resources and Services Admin.
Speakers:
Adrian D. Sandler, MD, FAAP, Mission Children’s Hospital
Sue Baker, Autism Services Consultant, Child Health Specialty Clinic
Juliann Woods, Ph.D., CCC–SLP, Florida State University
Jeff Sell, Esq., 1st Vice–Chair, Autism Society of America
Bonnie Strickland, Ph.D., Health Resources and Services Administration

Session B: School–Age (Room 151 AB)
Moderator: Gail Houle, Ph.D., Office of Special Education Programs,
U.S. Department of Education
Speakers:
Ilene Schwartz, Ph.D., University of Washington
Cathy Pratt, Ph.D., Indiana Institute on Disability and Community
Andrew Baumann, M.A., New York Families for Autistic Children
Robin Welsh, M.S., M.A., Esq., Department of Special Education, Calvert County, MD
Beth Caron, Ph.D., Office of Special Education and Rehabilitative Services

Session C: Secondary/Transition (Room 152 B)
Moderator: Joan Mele–McCarthy, D.A., Office of Special Education and
Rehabilitative Services
Speakers:
Susan E. Levy, M.D., Children’s Hospital of Philadelphia
Teresa Grossi, Ph.D., Indiana Institute on Disability and Community
Jim Ball, Ed.D., Sawtelle Learning Centers
Mayer Max, M.S., SharkaTech Research; Veterans National Healthcare
Volunteer Portal
Merlene Simon–Burroughs, Ph.D., Office of Special Education Programs
U.S. Department of Education

Session D: Adults (Room 143 ABC)
Moderator: Lee Grossman, Autism Society of America
Speakers:
Stephen Shore
Anna Hundley, NARPAA
Evelyne Milorin, Kennedy Fellow, Office of Special Education and Rehabilitative Services
Jenn Rigger, M.S., Rehabilitation Services Administration
William Kiernan, Ph.D., University of Massachusetts

3:00 BREAK
3:15 REPORT–OUTS FROM CONCURRENT SESSIONS (Room 151 AB)
3:35 PRESENTATIONS FROM EXPERTS IN THE FIELD (Room 151 AB)

Moderator: Joan Mele–McCarthy, D.A., Office of Special Education and
Rehabilitative Services
David Holmes, Ed.D., Eden Services
Robert Koegel, Ph.D., University of California, Santa Barbara
Stanley Greenspan, M.D., George Washington University Medical School
Ivar Lovaas, Ph.D., Lovaas Institute for Early Intervention
Lee Grossman, Autism Society of America
Ruth Christ–Sullivan, Ph.D., Autism Services Center
4:45 OPEN MIKE SESSION
5:00 Reception (Exhibit Hall, Room 150 AB) Sponsored by the Autism & Coalition for Research Education
Day 2: November 20, 2009
8:30 a.m. – 12:00 p.m. THEME 2: EARLY SCREENING AND DIAGNOSIS
8:30 Plenary Session (Room 151 AB)
The Current State of Developmental Screening General Developmental Screening and Screening for the ASDs
Moderator: José Cordero, M.D., M.P.H., CDC
Speakers:
Barry Zuckerman, M.D., Boston University
Peter Mundy, Ph.D., University of Miami
9:30 BREAK
Sponsored by the Autism Coalition for Research & Education
10:00 Concurrent Sessions
The “How To’s”: A Tool Box for Developmental Screening

(please see room assignments next to each session name)
 

Session A: How to Build Awareness Among Parents, Practitioners,
and Educators (Room 152 A)

Moderator: Lucille (Lu) Zeph, Ed.D., University of Maine
Speakers:
Nancy Wiseman, First Signs, Inc.
Katherine Lyon Daniel, Ph.D., Centers for Disease Control and Prevention
Panel Discussion:
Lee Grossman, Autism Society of America
Adrian Sandler, M.D., Mission Children’s Hospital
Margaret Dunkle, George Washington University

Session B: How to Test – Best Tests and Why (Room 152 B)
Discussant: Wendy Stone, Ph.D., Vanderbilt University
Speakers:
Frances Page Glascoe, Ph.D., Vanderbilt and Penn State Universities
Amy Wetherby, Ph.D., Florida State University
Deborah Fein, Ph.D., University of Connecticut

Session C: How to Put Into Practice—Best Models (Room 151 AB)
Moderator: Marian Earls, M.D., Guilford Child Health, Inc.
Speakers:
Ed Schor, M.D., The Commonwealth Fund
Jennifer Pinto–Martin, Ph.D., University of Pennsylvania
Panel Discussion:
Jim O’Brien, Ph.D., Agency for Children and Families, Head Start Bureau
Mary M. Gottesman, Ph.D., Ohio State University
Paul Dworkin, M.D.,University of Connecticut
Eric London, M.D., National Alliance for Autism Research

12:00 p.m. LUNCH
(concession stand will be in the foyer outside of the main meeting room)
1:00 THEME 3: BIOMEDICAL RESEARCH
 
1:00 Opening Remarks
Congressman Chris Smith, U.S. House of Representatives
Introduction by: Lee Grossman, Autism Society of America
1:15 Overview: Autism Research Matrix and Roadmap Activities
Tom Insel, M.D., NIMH
2:00 BREAK
2:15 Concurrent Sessions
(please see room assignments next to each session name)
  Session A: Genetics Research (Room 152 A)
Leaders:
Steve Moldin, Ph.D., NIMH
Dan Geschwind, M.D., Ph.D., University of California at Los Angeles
Andy Shih, Ph.D., National Alliance for Autism Research

Session B: Epidemiological and Environmental Research (Room 152 B)
Leaders:
Cindy Lawler, Ph.D., NIEHS
Diana Schendel, Ph.D., NCBDDD, CDC
Judith Grether, Ph.D., California Department of Health Services
W. Ian Lipkin, Ph.D., Columbia University
Kathleen Berry, Families for Early Autism Treatment
Rick Rollens, Co–Founder, UC Davis M.I.N.D. Institute

Session C: Early Intervention Research (Room 151 AB)
Leaders:
Ann Wagner, Ph.D., NIMH
Geraldine Dawson, Ph.D., University of Washington
Richard Fade, Northwest Autism Foundation
4:15 Closing Session (Room 151 AB)

Social Functions:

On Wednesday, November 19th, a luncheon takes place in Room 146 and is sponsored by the National Alliance for Autism Research. Scheduled guest speakers: Senator Hillary Rodham Clinton, NIMH Director Thomas Insel, and NINDS Director Story Landis. As various members of Congress have also been invited to speak, the agenda is subject to change.

On Wednesday, November 19th, a reception will take place from 5:00 – 6:00 pm in the Exhibit Hall (Room 150 AB). The reception is sponsored by the Autism Coalition for Research & Education.



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