The stigma attached to autism has a powerful impact on the psychological wellbeing of those whose lives are influenced by autism, including family caregivers. For example, research evidence highlights how, as a consequence of stigma, caregivers may hide their situation from others, withdraw from social situations, become more isolated and lonely, and experience a loss in self-esteem. Such consequences are particularly harmful for caregivers’ psychological well-being which can in turn affect their ability to provide care for their child. Therefore, the main aim of the proposed PhD studentship is to investigate the feasibility of a randomised controlled intervention for family caregivers of young children on the autism spectrum which specifically attempts to improve psychological well-being by protecting caregivers against stigma’s harmful effects. This includes increasing their social support, self-esteem, the positive meaning associated with their care-giving role, learning how to challenge autism myths, stereotypes and discrimination, and discussing and learning from each other’s experiences of stigma.A stigma protection intervention for caregivers of children with autism has never been conducted before. As such this study aligns with Autistica’s mission of producing positive impact through supporting groundbreaking research that improves understanding and advances new interventions. The study also aligns with the charity’s guiding principles of engagement, translation, immediacy, communication. For example, the communication principle states a need for best evidence that will reduce stigma and isolation among families. The main long-term benefit that this study will help bring about for families is the production of an intervention that is effective in improving caregiver wellbeing and, ultimately, their ability to care for their child. The main immediate benefit will be the advancement in our understanding of what enhances intervention feasibility, acceptability and potential effectiveness. The study also aims to increase social awareness of these issues through a series of dissemination activities.
Interagency Autism Coordinating Committee (IACC)
Autism Research Database (AFD)
