Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Developing a community-based ASD research registry  

The difficulty of enrolling large samples in research studies is a significant barrier to better understanding the causes and treatment of autism spectrum disorder, or ASD. This project will employ a new approach using community-academic partnerships to quickly and efficiently create an ASD research registry that includes at least 7500 individuals with ASD within the state of Pennsylvania interested in participating in research. Members of the registry will be as diverse as the broader population from which they are drawn and a cost-effective way of verifying their diagnosis will be tested. The research will also demonstrate how to build effective partnerships between universities and local and state agencies to advance research. Project Status


Funder National Institutes of Health
Fiscal Year Funding $500,000.00
Project Number 1RC1MH088791-01
Principal Investigator Doehring, Peter
Received ARRA Funding? Yes
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Strategic Plan Objective na
Federal or Private? Federal
Institution University of Pennsylvania/Children's Hospital of Philadelphia
State/Country Pennsylvania
Web Link 1 Developing a community-based ASD research registry (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects N/A