Skip to content
photos related to autism and publications about it

Autism Reports

2016

U.S. Government Accountability Office
Federal agencies have taken various actions to encourage early autism identification and interventions, such as specifically soliciting research in these areas. From fiscal year 2012 through fiscal year 2015, the departments of Defense (DOD), Education, and Health and Human Services (HHS), awarded about $395 million for research on early identification and interventions for autism.
U.S. Government Accountability Office
Youth with Autism Spectrum Disorder (ASD) transitioning to adulthood may need a wide range of services and supports to help them achieve their goals, according to a panel GAO convened in March 2016.
U.S. Preventive Services Task Force
The USPSTF commissioned a systematic review to evaluate the evidence on the accuracy, benefits, and potential harms of brief, formal screening instruments for ASD administered during routine primary care visits, and the benefits and potential harms of early behavioral treatment for children identified with ASD through screening. The review focused on studies of screening in children younger than 3 years who were unselected (ie, not identified because of risk factors or concerns regarding ASD).
U.S. Preventive Services Task Force
In this sixth annual report, the USPSTF has identified six recent topics for which the current evidence was insufficient for the Task Force to make a recommendation, including screening for autism in young children. Future research in these areas can help fill these gaps and would likely result in important new recommendations that will help to improve the health of Americans.
Centers for Disease Control and Prevention (CDC)
The Autism and Developmental Disabilities Monitoring (ADDM) Network is an active surveillance system that provides estimates of the prevalence and characteristics of ASD among children aged 8 years whose parents or guardians reside in 11 ADDM Network sites in the United States (Arkansas, Arizona, Colorado, Georgia, Maryland, Missouri, New Jersey, North Carolina, South Carolina, Utah, and Wisconsin). For 2012, the combined estimated prevalence of ASD among the 11 ADDM Network sites was 14.6 per 1,000 (one in 68) children aged 8 years. Estimated prevalence was significantly higher among boys aged 8 years (23.6 per 1,000) than among girls aged 8 years (5.3 per 1,000).

2015

Centers for Disease Control and Prevention (CDC)
This report by the CDC describes survey-based estimates of the lifetime prevalence of autism spectrum disorder from the 2014 National Health Interview Survey (NHIS).
U.S. Preventative Services Task Force
The USPSTF commissioned a systematic review to evaluate the evidence on the accuracy, benefits, and potential harms of brief, formal screening instruments for ASD administered during routine primary care visits, and the benefits and potential harms of early behavioral treatment for children identified with ASD through screening. The review focused on studies of screening in children younger than age 3 years who were unselected (i.e., not identified because of risk factors or concerns regarding ASD).
A.J. Drexel Autism Institute, Life Course Outcomes Research Program
This report published by the A.J. Drexel Autism Institute’s Life Course Outcomes Research Program presents evidence on a wide range of experiences and outcomes of young adults on the autism spectrum between high school and their early 20s.
U.S. Government Accountability Office
This report provides information gathered by the GAO on federal funding for autism research activities from 2008-2012.

2014

World Health Organization
The World Health Organization through the 67th World Health Assembly adopted this resolution to advise a clear set of actions to facilitate comprehensive intersectoral response to the needs of persons with ASD and other developmental disorders in all countries with high-, middle-, and low-income.
Centers for Disease Control and Prevention
This scientific research report from the CDC describes the background, methodology and results of a study of 2010 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, which monitors the number of 8-year-old children with ASDs living in diverse communities throughout the United States.
Department of Health and Human Services
This Report to Congress is required by Public Law 112-32 (PDF – 121 KB), the Combating Autism Reauthorization Act of 2011. The report describes progress and expenditures made in autism spectrum disorder (ASD)- related research and services activities across the Department of Health and Human Services, the Department of Education, the Department of Defense, the Environmental Protection Agency and the National Science Foundation from fiscal years 2010- 2012. Read the Full Report
Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services
In 2009, the Centers for Medicare & Medicaid Services (CMS) contracted with L&M Policy Research (L&M) and its partners, Truven Health Analytics (formerly the health care business of Thomson Reuters) and the National Association of State Directors of Developmental Disabilities Services, to address the growing need among federal and state policymakers and stakeholders for accurate and comprehensive information regarding available services and supports for people with ASD. The Autism Spectrum Disorders (ASD) State of the States of Services and Supports for People with ASD report stemmed from the Interagency Autism Coordinating Committee's (IACC's) 2010 and 2011 Strategic Plans. The overall goal of this project was to capture information about services for people with ASD across all federal and state-level agencies and offices that could serve as a useful tool and be updated on an as-needed basis. In addition, the project aimed to identify gaps in data.

2013

General Assembly of the United Nations
This resolution adopted by the General Assembly of the United Nations promotes the need to protect the human rights of individuals with ASD by ensuring equal opportunities and participation in society.
U.S. Government Accountability Office
This report describes the GAO's assessment of the activities of the Interagency Autism Coordinating Committee and the federal agencies within the Department of Health and Human Services, Department of Education, Department of Defense, National Science Foundation and Environmental Protection Agency from 2007-2013.
U.S. Government Accountability Office
This report describes how Department of Health and Human Services (HHS) agencies have responded to the Combating Autism Act of 2006 (CAA) by establishing some new autism activities and continuing others. The report focuses on the activities of the National Institutes of Health (NIH), the Health Resources and Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC).

2012

National Institute of Mental Health, Centers for Disease Control and Prevention and Health Resources and Services Administration
This report describes the results from a 2011 telephone survey of over 4,000 parents or guardians of a child between the ages of 6-17 who had a confirmed diagnosis of ASD, intellectual disability, and/or developmental delay. These survey interviews were a part of the Pathways to Diagnosis and Services Study, sponsored by NIMH, in collaboration with the CDC National Center for Health Statistics (NCHS) and the HRSA Maternal and Child Health Bureau at the Health Resources and Services Administration (HRSA). Key findings were that most children with ASD were diagnosed after age 5 and that they use multiple services and medications.
Department of Education
The U.S. Department of Education issued this Resource Document to provide guidance, and describe fifteen principles that States, school districts, school staff, parents, and other stakeholders may find helpful to consider when States, localities, and districts develop practices, policies, and procedures on the use of restraint and seclusion in schools.
Centers for Disease Control and Prevention
This scientific research report from the CDC describes the background, methodology and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, which monitors the number of 8-year-old children with ASDs living in diverse communities throughout the United States.
Centers for Disease Control and Prevention
This report from the CDC provides a lay-friendly summary of the background and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, including both compiled information from all sites and a detailed state-by-state breakdown of the information. It also includes sections describing how these data may be used and questions and answers about autism and autism prevalence.

2011

Department of Health and Human Services
This Report to Congress is required by Public Law 109-416 (PDF – 49 KB), the Combating Autism Act of 2006 (CAA). The report describes progress and expenditures made in autism spectrum disorder (ASD) research and services activities since the enactment of the CAA. Read the Full Report | Read the Summary and Highlights
Centers for Medicare & Medicaid Services
This report, released on April 1, 2011, assesses the implementation of evidence-based/promising practices through the lens of state experience, summarizing the current state of ASD-related services in Arizona, California, Connecticut, Indiana, Maine, Missouri, New Mexico, Pennsylvania, and Wisconsin. The report describes the types of services and supports provided by state and local governments; the sources of funding for programs; and the policy, staffing and implementation issues to be addressed to effectively serve people with ASD.
National Institutes of Health
This is the third National Institutes of Health (NIH) Biennial Report submitted under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482 (PDF – 178 KB)). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.
National Institutes of Health
This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2010 & 2011, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416 PDF – 49 KB)). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2010 & 2011, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482 (PDF – 178 KB)).

2010

Centers for Medicare & Medicaid Services
This report describes the results of a comprehensive review of scientific evidence regarding the efficacy, effectiveness, safety, and availability of ASD-related psychosocial services and supports for children, transitioning youth, and adults with ASD, including data on the evidence based interventions for people with ASD across the lifespan and data on the costs associated with providing services to people with ASD.

2009

National Institutes of Health
This is the second NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482 (PDF – 178 KB)). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.
National Institutes of Health
This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2008 & 2009, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416 (PDF – 49 KB)). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2008 & 2009, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482 (PDF – 178 KB)).

2007

National Institutes of Health
This is the first NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482 (PDF – 178 KB)). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.
National Institutes of Health
This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2006 & 2007, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, (PDF – 49 KB)). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2006 & 2007, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, (PDF – 178 KB)).

2006

Government Accountability Office
This report provides information on (1) the National Institutes of Health's (NIH) and the Centers for Disease Control and Prevention's (CDC) autism activities and these agencies' funding of autism activities, (2) programs that federal agencies have under way to support services for people with autism and concerns related to providing services, and (3) coordination of federal autism activities.

2005

Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
Government Accountability Office
This report describes the trend in the number of children diagnosed with autism served under IDEA, the services provided to these children, the estimated per pupil expenditures for educating children with autism, and approaches to their education.

2004

Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".

2003

Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
Department of Health and Human Services and Department of Education
Complementing the activities of the IACC, the Department of Health and Human Services and the Department of Education sponsored an Autism Summit Conference. The summit provided a public forum to disseminate, evaluate, and integrate the latest practice- and science-based autism information among Federal, academic, and community participants. The summit included keynote addresses from public officials and sessions focused on issues such as implementation of optimal services, early screening and diagnosis, and biomedical research.

2002

Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".

2001

Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
 
Back to Top