Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Understanding the delay in the diagnosis of autism  

This is a Research Scientist Development Award supporting a candidate researcher in Dr. David Mandell's laboratory. The project includes developing a program of research related to understanding the pathways and processes by which children with autism are screened, diagnosed, and enter treatment. This is a three-phase study that builds upon a federally funded prevalence study. Children with autism will be identified using medical and school records, and factors associated with the age of diagnosis will be assessed using these records and family interviews. In addition, data will be collected on children who have recently screened positive for autism, and additional interviews with parents will be conducted if autism is diagnosed. It is anticipated that as a result of this research, interventions will be developed that decrease the age at which children with autism receive the diagnosis and enter treatment. In addition, the results from this study may inform understanding of factors affecting the early and appropriate diagnosis of other psychiatric and developmental disorders of childhood, leading to the development of broader interventions to expedite appropriate diagnosis. Project Status


Funder National Institutes of Health
Fiscal Year Funding $139,072.00
Project Number 5K01MH067628-05
Principal Investigator Mandell, David
Received ARRA Funding? No
Strategic Plan Question Question 1: When Should I Be Concerned? (Diagnosis)
Strategic Plan Objective New! Yellow dot: Objective has some degree of funding, but less than the recommended amount. 1SC. Conduct at least three studies to identify reasons for the health disparities in accessing early screening and diagnosis services by 2012. IACC Recommended Budget: $2,000,000 over 2 years.
Federal or Private? Federal
Institution University of Pennsylvania
State/Country Pennsylvania
Web Link 1 Understanding the delay in the diagnosis of autism (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects Understanding the delay in the diagnosis of autism | $136,488.00 | 2008 | K01MH067628-04