Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

State of the States  

The State of the States project is broadly reviewing existing State programs and supports provided to autism spectrum disorder (ASD) people and their families across all 50 States and the District of Columbia. The project addresses 3 central questions: 1) What type of publicly funded services and supports are available for people with ASD?, 2) How many people receive the supports?, and 3) How are States improving diagnosis and services for people with ASD, regardless of payment source? Using quantitative and qualitative research methodologies, the project will collect information on how many people access ASD-related supports and services in a variety of service systems, including Social Security, the educational system, early intervention and employment services, institutional services, and Home and Community-Based Services. The content of service provision will be assessed by interviews with both State agencies and ASD stakeholders designed to address the types of services/supports available, extent of insurance coverage for those service/supports, leisure/recreational opportunities offered, staff training, and overall State policy infrastructure, among others. While most of the quantitative data collection has been completed, the entire project is to be completed at the end of 2011. The results are expected to provide the first comprehensive analysis of ASD services and supports available through State programs. Project Status


Funder Centers for Medicare & Medicaid Services
Fiscal Year Funding $7,061.00
Project Number Project number unavailable
Principal Investigator No PI listed
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7B. Conduct an annual "State of the States" assessment of existing state programs and supports for people and families living with ASD by 2009. IACC Recommended Budget: $300,000 each year.
Federal or Private? Federal
Institution Centers for Medicare & Medicaid Services (CMS)
State/Country District of Columbia
Web Link 1 No URL available.
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects State of the States for people with ASD | $197,128.00 | 2010 | 500-2006-00009I/HHSM-500-T0002
State of the states in services and supports for persons with autism spectrum disorder. | $88,153.86 | 2011 | 500-2006-00009I/HHSM-500-T0002
State of the states in services and supports for persons with autism spectrum disorder. | $0.00 | 2012 | 500-2006-00009I/HHSM-500-T0002