Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Impacts of parenting adolescents & adults with autism  

Little is known about the impact of caring for a child with an autism spectrum disorder (ASD) when he or she reaches adolescence and adulthood. With this grant, researchers will continue a prospective and comparative study of mothers of adolescents and adults with ASD, focusing on 4 major areas: 1) factors predicting resiliency and vulnerability in mothers, 2) measures of daily stress in mothers, 3) change in the manifestation of autism during adolescence and adulthood, and 4) antecedents and consequences of age-related major life transitions as experienced by adolescents and adults with ASD. This study constitutes the largest research sample (n=406; 78.3 percent of whom are still participating) of adolescents and adults with ASD and their midlife and aging families, and current funding will allow the longitudinal study duration to be extended to 12 years. Findings from this study will elucidate factors affecting the well-being of both mothers and their son or daughter with ASD across broad stretches of the life course. Project Status


Funder National Institutes of Health
Fiscal Year Funding $496,331.00
Project Number 5R01AG008768-18
Principal Investigator Seltzer, Marsha
Received ARRA Funding? No
Strategic Plan Question Question 2: How Can I Understand What Is Happening? (Biology)
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 2LA. Complete a large-scale, multi-disciplinary, collaborative project that longitudinally and comprehensively examines how the biological, clinical, and developmental profiles of individuals, with a special emphasis on females, youths, and adults with ASD, change over time as compared to typically developing people by 2020. IACC Recommended Budget: $126,200,000 over 12 years.
Federal or Private? Federal
Institution University of Wisconsin - Madison
State/Country Wisconsin
Web Link 1 Impacts of parenting adolescents & adults with autism (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects Impacts of parenting adolescents & adults with autism | $586,170.00 | 2010 | 5R01AG008768-19
Impacts of parenting adolescents & adults with autism | $480,757.00 | 2008 | R01AG008768-17