Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Impacts of parenting adolescents & adults with autism  

Little is known about the impact of caring for a child with an autism spectrum disorder (ASD) when he or she reaches adolescence and adulthood. With this grant, researchers will continue a prospective and comparative study of mothers of adolescents and adults with ASD, focusing on 4 major areas: 1) factors predicting resiliency and vulnerability in mothers, 2) measures of daily stress in mothers, 3) change in the manifestation of autism during adolescence and adulthood, and 4) antecedents and consequences of age-related major life transitions as experienced by adolescents and adults with ASD. This study constitutes the largest research sample (n=406; 78.3 percent of whom are still participating) of adolescents and adults with ASD and their midlife and aging families, and current funding will allow the longitudinal study duration to be extended to 12 years. Findings from this study will elucidate factors affecting the well-being of both mothers and their son or daughter with ASD across broad stretches of the life course. Project Status


Funder National Institutes of Health
Fiscal Year Funding $586,170.00
Current Award Period 2007-2012
Project Number 5R01AG008768-19
Principal Investigator Seltzer, Marsha
Received ARRA Funding? No
Strategic Plan Question Question 6: What Does the Future Hold, Particularly for Adults? (Lifespan)
Subcategory N/A
Strategic Plan Objective Green dot: Objective has greater than or equal to the recommended funding. 6LB. Conduct one study that builds on carefully characterized cohorts of children and youth with ASD to determine how interventions, services, and supports delivered during childhood impact adult health and quality of life outcomes by 2015. IACC Recommended Budget: $5,000,000 over 5 years.
Federal or Private? Federal
Institution University of Wisconsin - Madison
State/Country Wisconsin
Web Link 1 Impacts of parenting adolescents & adults with autism (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
History/Related Projects Impacts of parenting adolescents & adults with autism | $496,331.00 | 2009 | 5R01AG008768-18
Impacts of parenting adolescents & adults with autism | $480,757.00 | 2008 | R01AG008768-17