Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Autism in the second half of the lifespan: Behavior, daily living, service needs  

Autism is a lifetime disorder, but surprisingly little is known about the effects it has on the individual's abilities, needs, and experiences as he or she reaches and continues through adulthood. Moreover, there is a real possibility that the detrimental effects typical of normal aging may be accelerated in individuals with autism. An understanding of cognitive and functional aging in adults with autism is vital in order to predict the long-term impact on individuals, their families, and on health support systems. In this study, researchers will characterize the support needs of ASD individuals in middle and later-age (30-70 years) by surveying subjects and their caregivers to determine individual level of independence, daily living skills, social skills, frequency of problem behaviors, and overall quality of life. Extensive information will be collected with regard to service usage and support needs, and direct testing will be used to determine cognitive and motor functions and current autism symptomology. Results from this project will help to determine the effects of aging on the individual with autism and, in turn, may help to predict future support needs for this population as they age and as they transition from family support to public support. Project Status


Funder National Institutes of Health
Fiscal Year Funding $263,837.00
Current Award Period 2009-2011
Project Number 5R21MH089645-02
Principal Investigator Carper, Ruth
Received ARRA Funding? Yes
Strategic Plan Question Question 6: What Does the Future Hold, Particularly for Adults? (Lifespan)
Subcategory N/A
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 6SA. Launch at least two studies to assess and characterize variation in the quality of life for adults on the ASD spectrum as it relates to characteristics of the service delivery system (e.g., safety, integrated employment, post-secondary educational opportunities, community inclusion, self-determination, relationships, and access to health services and community-based services) and determine best practices by 2012. IACC Recommended Budget: $5,000,000 over 3 years.
Federal or Private? Federal
Institution University of California, San Diego
State/Country California
Web Link 1 Autism in the second half of the lifespan: Behavior, daily living, service needs (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Autism in the second half of the lifespan: Behavior, daily living, service needs | $270,312.00 | 2009 | 1R21MH089645-01