Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Bioinformatics support for AGRE  

The Autism Genetic Resource Exchange (AGRE) is the first collaborative gene bank for the study of autism spectrum disorders. One of the world's largest shared resources for the study of autism and related disorders, AGRE houses a collection of over 1300 well-characterized multiplex and simplex families made available to the greater scientific community. Founded by Cure Autism Now (CAN) in 1997, AGRE is currently funded by the National Institute of Mental Health (NIMH) and Autism Speaks (AS), which merged with CAN in 2006. Thanks to Autism Speaks and its thousands of supporters, AGRE will continue to serve as a moving force in the advancement of autism research. Complex neuropsychiatric disorders such as autism are best approached by collaborative research efforts that pool large samples to generate meaningful results. AGRE exists to serve researchers in the field of autism and, as such, is committed to meeting the needs of individual researchers, institutions, and collaborative research groups. Project Status


Funder Autism Speaks
Fiscal Year Funding $318,287.00
Current Award Period Ongoing
Project Number n/a
Principal Investigator Staff Member
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Subcategory Biobanks
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7D. Establish and maintain an international network of biobanks for the collection of brain, fibroblasts for pluripotent stem cells, and other tissue or biological material, by acquisition sites that use standardized protocols for phenotyping, collection, and regulated distribution of limited samples by 2011. This includes developing fibroblast repositories to produce pluripotent stem cells. Protocols should be put into place to expand the capacities of ongoing large-scale children's studies to collect and store additional biomaterials, promoting detection of biological signatures. IACC Recommended Budget for establishing biobanks by 2011: $10,500,000 over 2 years. IACC Recommended Budget for maintaining biobanks: $22,200,000 over 5 years.
Federal or Private? Private
Institution Autism Speaks (AS)
State/Country New York
Web Link 1 Bioinformatics support for AGRE (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Bioinformatics support for AGRE | $225,936.00 | 2009 | Project number unavailable