Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Rutgers, The State University of New Jersey  

The Rutgers University Cell and DNA Repository (RUCDR) coordinates the shipment, receipt, processing, and distribution of all the biospecimens in the Simons Simplex Collection. The RUCDR Communications Department assembles the mailing kits that are used by the collection sites to submit blood samples and coordinates the receipt of the samples, including logging them into a database with direct reporting to the SFARI database. The various labs at RUCDR then process the samples for creation of Epstein-Barr virus (EBV)-transformed cell lines to serve as a renewable resource for scientific investigation, as well as extraction of DNA and plasma for distribution to Simons Foundation-approved investigators. Each sample that is processed at the RUCDR undergoes extensive quality control and identity assessment, including SNP genotyping with an identity panel, fragile X testing to aid in curating the SSC for exclusion of participants with fragile X, and parentage testing to ensure that the pedigree relationships of each family are correct. Project Status


Funder Simons Foundation
Fiscal Year Funding $4,930,840.39
Current Award Period Ongoing
Project Number n/a
Principal Investigator Contract
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Subcategory Biobanks
Strategic Plan Objective Yellow dot: Objective has some degree of funding, but less than the recommended amount. 7D. Establish and maintain an international network of biobanks for the collection of brain, fibroblasts for pluripotent stem cells, and other tissue or biological material, by acquisition sites that use standardized protocols for phenotyping, collection, and regulated distribution of limited samples by 2011. This includes developing fibroblast repositories to produce pluripotent stem cells. Protocols should be put into place to expand the capacities of ongoing large-scale children's studies to collect and store additional biomaterials, promoting detection of biological signatures. IACC Recommended Budget for establishing biobanks by 2011: $10,500,000 over 2 years. IACC Recommended Budget for maintaining biobanks: $22,200,000 over 5 years.
Federal or Private? Private
Institution Rutgers, The State University of New Jersey
State/Country New Jersey
Web Link 1 Rutgers, The State University of New Jersey (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
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